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Publications
Richardson D, Zhan L, Reynolds M, Hollis K, McRoy L, Mitra D, Mahtani R. Trends in daily mood, pain, and fatigue among participants in the MADELINE study. Poster presented at the 2019 San Antonio Breast Cancer Symposium; December 11, 2019. San Antonio, TX.
Hauber B, DiBenedetti D, Vradenburg G, Callahan L, Potashman M, Krasa H, Hartry A, Wunderlich G, Hoffman D, Wieberg D, Kremer I. Identifying what matters to people with and at risk for Alzheimer's disease and their care partners: concept elicitation and item development. Poster presented at the 12th Clinical Trials in Alzheimer’s Disease (CTAD) Meeting; December 6, 2019. San Diego, CA.
Doward L, Balp MM, Poepsel T, Twiss J, Brass C, Cai J, Cryer D, Sanyal AJ, Anstee QM. International adaptation and linguistic validation of NASH-CHECK, a novel patient-reported outcome measure for patients with Nonalcoholic Steatohepatitis. Poster presented at the ISPOR 2019 European Conference; November 2019. Copenhagen, Denmark.
Savatt JA, Azzariti DR, Faucett A, Florin J, Ledbetter DH, Rangel Miller V, Palen E, Rehm HL, Rhode J, Rogers L, Talbird S, Trutoiu L, Vidal JA, Waggoner C, Rooney Riggs E, Lese Martin C. Expanding patient data sharing: GenomeConnect's pilot to engage external registries in data sharing. Poster presented at the 2019 National Society of Genetic Counselors (NSGC) 38th Annual Conference; November 2019. Salt Lake City, UT.
Augustin M, Feldman S, Poulos C, Gilloteau I, Mange B, Boeri M, Boehm K, Melzer N, Gutknecht M. Patient preferences for treatment of moderate to severe psoriasis: a discrete choice experiment study in Germany. Poster presented at the 28th European Academy of Dermatology and Venereology (EADV) Congress; October 11, 2019. Madrid, Spain.
Njue A, Margulis AV, Lyall M, Nuabor W, Marks M, Russell K, Sinha A. Congenital cytomegalovirus: what are the rates of maternal screening, diagnostic amniocentesis, and elective termination? Poster presented at the ID Week 2019; October 4, 2019. Washington, DC.
Price MA, Joish VN, Schwartz S, Fish-Steagall A, Bennett L, Darden C, Tesfaye E, Arnold K, Wason S, Lapuerta P. Xermelo patient registry: improvements in clinical outcomes, patients satisfaction, and weight with telotristat ethyl in the real-world. Poster presented at the 2019 North American Neuroendocrine Tumor Society (NANETS) Conference; October 3, 2019. Boston, MA.
Shah R, Girard N, Nagar S, Griesinger F, Roeper J, Davis KL, Bakker NA, Thakrar B, Taylor A, Feliciano J. Real-world (RW) treatment patterns and outcomes for second-line (2L) therapy and beyond in patients (pts) with epidermal growth factor receptor mutated (EGFRm) advanced NSCLC receiving a first-line (1L) first- or second generation (1G/2G) EGFR tyrosine kinase inhibitor (TKI). Poster presented at the ESMO 2019 Congress; September 27, 2019. Barcelona, Spain.
Mazieres J, Ahn MJ, Chouaid C, Kron A, Wolf J, Goyal RK, Davis KL, Perrinjaquet M, Pham T, Knoll S. Genetic testing patterns, treatment characteristics, and overall survival in ALK-positive metastatic NSCLC patients treated with Ceritinib. Poster presented at the 2019 World Conference on Lung Cancer; September 8, 2019. Barcelona, Spain.
Vradenburg G, DiBenedetti DB, Hauber B, Slota C, Wronski SL, Comer M, Callahan LF, Winfield J, Rubino I, Krasa HB, Hartry A, Wieberg BA, Kremer IN, Lappin D, Martin AD, Frangiosa T, Biggar V. Findings from the Alzheimer' Disease Patient and Caregiver Engagement (AD PACE) initiative's what matters most qualitative study. Poster presented at the 2019 Alzheimer's Association International Conference (AAIC); July 17, 2019. Los Angeles, CA.
Dunne JL, Sutphin J, Bushman JS, Fontanals-Cirera B, Coulter JR, Hutton CT, Koralova A, Ervin CM, Mansfield C. Parent and physician preferences for screening in Type 1 diabetes (T1D). Poster presented at the American Diabetes Association’s 79th Scientific Sessions; June 10, 2019. San Francisco, CA.
Gemzoe K, Crawford R, Caress A, Rushton R, Shah A, Collier S, Doward L, Vekaria R, Worsley S, Leather DA. Patient and healthcare professional (HCP; general practitioner [GP] and practice manager [PM]) insights to facilitate engagement in future effectiveness studies: learnings from the Salford Lung Studies (SLS). Poster presented at the 2019 American Thoracic Society (ATS) International Conference; May 22, 2019. Dallas, TX.
Carrico J, Jia X, Zhao Y, Zhang J, Brodtkorb TH, Mendelsohn AB, Lowry S, Wu JJ, Feldman SR, Armstrong AW. Budget-impact and cost-effectiveness of tildrakizumab for the treatment of moderate-to-severe plaque psoriasis from a US health plan perspective. Poster presented at the 2019 ISPOR 24th Annual International Meeting; May 21, 2019. New Orleans, LA.