Publications

Search our bibliography using the filters on the right-hand side.

Displaying 1 through 50 of 119 publications.

Doward LC, Balp M-M, Twiss J, Slota C, Cryer D, Brass CA, Anstee QM, Sanyal AJ. Development of a patient-reported outcome measure for non-alcoholic steatohepatitis (NASH-CHECK): results of a qualitative study. Patient. 2020 Dec 18. doi: 10.1007/s40271-020-00485-w

Bhargava S, Hill N, Mogle J. Self-reported memory problems are related to depressive symptoms in older adults with certain personality traits. Poster presented at the 2020 Gerontological Society of America (GSA) Annual Scientific Meeting; November 4, 2020. [abstract] Innov Aging. 2020 Dec 16; 4(Supplement_1,2020):389-90. doi: 10.1093/geroni/igaa057.1254

Gold A, Meza E, Ackley SF, Mungas DM, Whitmer R, Mayeda ER, Miles S, Eng C, Gilsanz P, Glymour MM. Adverse childhood experiences and late life cognitive performance across racial/ethnic groups: results from the KHANDLE cohort. Poster presented at the 2020 Society for Epidemiological Research 53rd Annual Virtual Meeting; December 16, 2020.

Zapater A, Sanchez-de-la-Torre M, Benitez ID, Targa A, Bertran S, Torres G, Aldoma A, De Batlle J, Abad J, Duran-Cantolla J, Cabriada-Nuno V, Mediano O, Masdeu MJ, Munoz C, Masa JF, de La Pena M, Mayos M, Coloma R, Montserrat JM, Chiner E, Minguez O, Pascual L, Cortijo A, Martinez D, Dalmases M, McEvoy RD, Barbe F, Sanchez-de-la-Torre A, Spanish Sleep Network. The effect of sleep apnea on cardiovascular events in different acute coronary syndrome phenotypes. Am J Respir Crit Care Med. 2020 Dec 15;202(12):1698-706. doi: 10.1164/rccm.202004-1127OC

Davidson D, Hsieh A, Vera-Llonch M, Stevenson M, Brown TM, Slota CM, Fehnel SE. Development of a novel patient-reported outcome measure for symptoms and impacts of familial chylomicronemia syndrome. Poster presented at the 2020 Virtual National Lipid Association Scientific Sessions; December 10, 2020.

Shah SN, Hepp Z, Martin S, Harris N, Morgans A. Qualitative analysis of pain in patients with locally advanced or metastatic urothelial cancer. Poster presented at the Virtual ISPOR Europe 2020 Conference; November 2020. [abstract] Value Health. 2020 Dec; 23(S2).

Ervin CM, Whalley D, von Huth Smith L, Crawford R, Dine J, Fehnel SE. Development of the impact of weight on daily activities questionnaire: a patient-reported outcome measure. Clin Obes. 2020 Dec;10(6):e12387. doi: 10.1111/cob.12387

Carsin AE, Keidel D, Fuertes E, Imboden M, Weyler J, Nowak D, Heinrich J, Erquicia SP, Martinez-Moratalla J, Huerta I, Sanchez JL, Schaffner E, Caviezel S, Beckmeyer-Borowko A, Raherison C, Pin I, Demoly P, Leynaert B, Cerveri I, Squillacioti G, Accordini S, Gislason T, Svanes C, Toren K, Forsberg B, Janson C, Jogi R, Emtner M, Real FG, Jarvis D, Guerra S, Dharmage SC, Probst-Hensch N, Garcia-Aymerich J. Regular physical activity levels and incidence of restrictive spirometry pattern: a longitudinal analysis of 2 population-based cohorts. Am J Epidemiol. 2020 Dec 1;189(12):1521-8. doi: 10.1093/aje/kwaa087

Lennon RP, Griffin C, Miller EL, Dong H, Rabago D, Zgierska AE. Norovirus infections drop 49% in the United States with strict COVID-19 public health interventions. Acta Med Acad. 2020 Dec;49(3):278-80. doi: 0.5644/ama2006-124.317

Mogle J, Hill NL, Bell TR, Bhargava S, Bratlee-Whitaker E, Wion RK, Tiwari PA. Combined influences of dementia exposure and personality on self-reported memory problems. Am J Alzheimers Dis Other Demen. 2020 Dec;35. doi: 10.1177/1533317519899792

Mogle J, Hill NL, Rabin L, Katz MJ. Differences in everyday cognitive difficulties in demographically diverse community-dwelling older adults using daily diaries: a comparison among older adults with and without SCD. Poster presented at the Virtual Alzheimer's Association International Congress (AAIC) 2020; July 27, 2020. [abstract] Alzheimers Dement. 2020 Dec; 16(S6):E044005. doi: 10.1002/alz.044005

Fastenau J, Rozjabek H, Qin S, McLeod L, Nelson L, Ma J, Harris N. Psychometric evaluation of the DAILY EATS questionnaire in individuals living with obesity. J Patient Rep Outcomes. 2020 Nov 23;4(1):99. doi: 10.1186/s41687-020-00259-w

Gillespie S, Patel M, Ha G, Snyder B, Lennon R, Miller E, Van Scoy L. Assessing knowledge, perceptions and preferred information sources of persons with diabetes during the COVID-19 pandemic. Poster presented at the Virtual 48th North American Primary Care Research Group (NAPCRG) Annual Meeting; November 20, 2020.

Ha G, Patel M, Gillespie S, Snyder B, Lennon R, Miller E, Van Scoy L. COVID-19 vaccine confidence: results of a global mixed methods survey. Poster presented at the Virtual 48th North American Primary Care Research Group (NAPCRG) Annual Meeting; November 20, 2020.

Sakya S, Garman J, Van Scoy L, Miller E, Snyder B, Chinchilli V, Lennon R. Preferred COVID-19 information sources among central Pennsylvania adults early in the pandemic: a cross-sectional survey. Poster presented at the Virtual North American Primary Care Research Group (NAPCRG) 2020 Annual Meeting; November 20, 2020.

Lennon R, Ruffin M, Miller E, Van Scoy L, Zgierska A, Rabago D. Patient perceptions of the SARS-CoV-2 pandemic: a cross-sectional convergent mixed-methods questionnaire. Presented at the Virtual 2020 North American Primary Care Research Group (NAPCRG) Annual Meeting; November 20, 2020.

Lennon R, Sakya S, Miller E, Snyder B, Yaman T, Zgierska A, Ruffin M, Van Scoy L. Public intent to comply with COVID-19 public health recommendations. Presented at the Virtual 48th North American Primary Care Research Group (NAPCRG) Annual Meeting; November 20, 2020.

Rudell K, Doward L, Bennett B, Rodriguez AM, Jane Rylands AJ. Expanding COA in 2020 – guidance in RWE and improving communication between different stakeholders. Presented at the Virtual ISPOR Europe 2020 Conference; November 11, 2020.

Sun SX, Olayinka-Amao O, DiBenedetti D. Assessing patient experiences with prophylactic treatments for hemophilia A: concept elicitation for gene therapy. Poster presented at the 62nd Annual Virtual Meeting of the American Society of Hematology (ASH); December 5, 2020. [abstract] Blood. 2020 Nov 5; 136(Suppl 1):33-4.

Spira AI, Chen L, Zhou X, Gnanasakthy A, Wang L, Ungar D, Curiel R, Radford JA, Kahl BS. Symptoms, health-related quality of life, and tolerability of loncastuximab tesirine in patients with relapsed or refractory diffuse large b cell lymphoma. Blood. 2020 Nov 5;136(Suppl 1):3-4. doi: 10.1182/blood-2020-139571

Su J, Kosa K, DiBenedetti D. Patient-reported disease burden: in-depth interviews of patients with CAD. Poster presented at the 2020 Virtual 62nd ASH Annual Meeting and Exposition; December 6, 2020. [abstract] Blood. 2020 Nov 5; 136(Suppl 1):29-30.

Starr HL, Abell J, Larish A, Lewis S, DeMuro C, Gogate J, Jamieson C, Daly E, Zaki N, Kramer M. Self-reported review of the value of esketamine in patients with treatment-resistant depression: understanding the patient experience in the STRIVE Study. Psychiatry Research. 2020 Nov;293:113376. doi: 10.1016/j.psychres.2020.113376

Cohen AD, Hari P, Htut M, Berdeja JG, Madduri D, Usmani SZ, Allred AJ, Olyslager Y, Banerjee A, Goldberg JD, Schecter JM, Jackson CC, Gries KS, Fastenau J, Deraedt W, Carrasco MJ, Akram M, Hossain F, Crawford R, Morrison R, Doward L, Jakubowiak A, Jagannath S. Patient expectations and perceptions of treatment in cartitude-1: phase 1b/2 study of ciltacabtagene autoleucel in relapsed/refractory multiple myeloma. Poster presented at the 62nd Annual Virtual Meeting of the American Society of Hematology (ASH); December 2020. [abstract] Blood. 2020 Nov; 136(Suppl 1):13-6. doi: 10.1182/blood-2020-136383

Bhang I, Mogle J, Hill N, Whitaker EB, Bhargava S. Examining the temporal associations between self-reported memory problems and depressive symptoms in older adults. Aging Ment Health. 2020 Nov;24(11):1864-71. doi: 10.1080/13607863.2019.1647135

Sauchelli S. Digitalising diabetes support groups in response to the coronavirus COVID ‐19 outbreak: a collaborative initiative. Pract Diabetes. 2020 Nov;37(6):208. doi: 10.1002/pdi.2306

Sauchelli S. Digitalising diabetes support groups in response to the coronavirus COVID-19 outbreak: a collaborative initiative. Pract Diabetes. 2020 Nov;37(6):208-210a. doi: 10.1002/pdi.2306

Neshteruk CD, Norman K, Armstrong SC, Skinner A. Association between obesity, cardiovascular disease risk factors, and parenthood: NHANES 2011-2016. Poster presented at the 38th Annual Meeting of the Obesity Society; November 6, 2020. Virtual. [abstract] Obesity (Silver Spring). 2020 Nov; 28:51. doi: 10.1002/oby.23063

Hunter S, Garbinsky D, La EM, Poston S, Hogea C. Impact of state of residence on adult vaccination uptake: a multilevel modeling approach. Presented at the IDWeek 2020 Virtual Conference; October 21, 2020.

Saretsky T, DeMuro C, Finelli L, Phillips M, Lewis S, Martin E, Osborne R, Norquist J. Modification of an existing patient-reported outcome measure (PROM) for a new context of use in a seasonal infectious disease. Poster presented at the 27th Annual Virtual Conference of the International Society for Quality of Life Research (ISQOL); October 19, 2020. [abstract] Qual Life Res. 2020 Oct 17; 29(Suppl 1):S139. doi: 10.1007/s11136-020-02626-y

Ghaswalla PK, Garbinsky D, Poston S, Hunter S, Novy P, La EM. Correlates of and disparities in meningococcal B vaccination coverage among 17-year-olds in the United States: a pooled analysis of 2016-2018 National Immunization Survey-Teen. Poster presented at the 2020 Virtual American Academy of Pediatrics National Conference; October 2, 2020.

Reed S, Getahun D, Gatz J, Armstrong M, Raine-Bennett T, Zhou X, Fassett M, Peipert J, Saltus CW, Im T, Alabaster A, Hunter S, Takhar H, Chillemi G, Xie F, Wang J, Chiu V, Frenz A, Shi J, Lynen R, Asiimwe A, Anthony MS. Postpartum timing of IUD insertion is associated with risk of uterine perforation: results from APEX IUD. Poster presented at the Society of Family Planning Virtual 2020 Annual Meeting; October 9, 2020. [abstract] Contraception. 2020 Oct; 102(4):302. doi: 10.1016/j.contraception.2020.07.099

Henderson GE, Ewing M, Kuczynski KJ, Cadigan RJ, Waltz M, Butterfield RM, Rini C, Weck K, Berg JS, Edwards TP. Development and validation of a measure of comprehension of genomic screening-negative results (CoG-NR). Eur J Hum Gene. 2020 Oct;28(10):1394-402. doi: 10.1038/s41431-020-0657-1

Whalley D, Twiss J, Doward L, Balp MM, Brass C, Tietz A, Loeffler J, Lopez P, Lawitz EJ, Sanyal AJ. A novel patient-reported outcome measure indicates low burden of treatment among patients with non-alcoholic steatohepatitis: interim results from a phase 2 trial of tropifexor. Poster presented at the AASLD 2020 annual meeting; November 13, 2020. Boston, MA. [abstract] Hepatology. 2020 Oct 1; 72(S1):1005A. doi: 10.1002/hep.31579

Raine-Bennett TR, Gatz JL, Reed SD, Armstrong MA, Getahun D, Zhou X, Merchant M, Takhar HS, Ichikawa LE, Peipert JF, Saltus CW, Fassett MJ, Chillemi GA, Im TM, Lynen R, Shi JM, Wang J, Xie F, Hunter S, Chiu VY, Asiimwe A, Anthony MS. Postpartum timing of IUD insertion is associated with risk of IUD expulsion: results from APEX IUD. Poster presented at the Society of Family Planning Virtual 2020 Annual Meeting; October 9, 2020. [abstract] Contraception. 2020 Oct; 102(4):295-6.

Doward L, Twiss J, Whalley D, Balp MM, Brass C, Loeffler J, Cryer DR, Cai J, Lopez P, Lawitz EJ, Anstee QM, Sanyal AJ. Development of NASH-CHECK: a new patient-reported outcome measure for NASH. Poster presented at the AASLD 2020 annual meeting; November 13, 2020. Boston, MA. [abstract] Hepatology. 2020 Oct 1; 72(S1):1014A-5A. doi: 10.1002/hep.31579

English M, Stoykova B, Slota C, Doward L, Siddiqui E, Crawford R, DiBenedetti D. Qualitative study of the burden of vasomotor symptoms associated with menopause and content validity of two PROMIS sleep measures in menopausal women. Poster presented at the NAMS 2020 Virtual Meeting; September 30, 2020.

Rabin LA, Wang C, Mogle JA, Lipton RB, Derby CA, Katz MJ. An approach to classifying subjective cognitive decline in community-dwelling elders. Alzheimers Dement (NY). 2020 Sep 28;12(1):e12103. doi: 10.1002/dad2.12103

Martinez D, Ziemiecki R, Aguado J, Plana E, Rebordosa C. Is chronic obstructive pulmonary disease reco(r)ded similarly in CPRD GOLD and Aurum? Poster presented at the 2020 36th ICPE International Virtual Conference on Pharmacoepidemiology & Therapeutic Risk Management; September 16, 2020.

Aguado J, Martinez D, Plana E, Ziemiecki R, Rebordosa C. Reco(r)ding of lifestyle variables in CPRD Aurum compared with GOLD. Poster presented at the 2020 36th ICPE International Virtual Conference on Pharmacoepidemiology & Therapeutic Risk Management; September 16, 2020.

Plana E, Ziemiecki R, Martinez D, Aguado J, Rebordosa C. Are diabetes and glucose-lowering drugs equivalently reco(r)ded in CPRD GOLD and Aurum? Poster presented at the 2020 36th ICPE International Virtual Conference on Pharmacoepidemiology & Therapeutic Risk Management; September 16, 2020.

Sauchelli S, Bradley J, Cox J, England C, Perry R. Weight maintenance interventions for people with type 2 diabetes mellitus: a systematic review protocol. Syst Rev. 2020 Sep 12;9(1):210. doi: 10.1186/s13643-020-01467-7

Garcia-Aymerich J, Carsin A, Probst-Hensch N, Granell R, Dharmage S, Jarvis D. Lung function curve over the life-course using longitudinal data from multiple cohorts. Presented at the 2020 ERS Congress Virtual; September 6, 2020.

Bedard A, Carsin AE, Fuertes E, Accordini S, Dharmage SC, Garcia-Larsen V, Heinrich J, Janson C, Johannessen A, Leynaert B, Sanchez-Ramos JL, Peralta GP, Pin I, Squillacioti G, Weyler J, Jarvis D, Garcia-Aymerich J. Physical activity and lung function-cause or consequence? PLoS One. 2020 Aug 20;15(8):e0237769. doi: 10.1371/journal.pone.0237769

Lennon RP, Sakya SM, Miller EL, Snyder B, Yaman T, Zgierska AE, Ruffin 4th MT, Van Scoy LJ. Public intent to comply with COVID-19 public health recommendations. Health Lit Res Pract. 2020 Aug 6;4(3):e161-5. doi: 10.3928/24748307-20200708-01

Block, Jr. R, Berg A, Lennon RP, Miller EL, Nunez-Smith M. African American adherence to COVID-19 public health recommendations. Health Lit Res Pract. 2020 Aug 6;4(3):e166-70. doi: 10.3928/24748307-20200707-01

O’Connor G, Julvez J, Fernandez-Barres S, Navarrete-Munoz EM, Murcia M, Tardon A, Galan IR, Amiano P, Ibarluzea J, Garcia-Esteban R, Vrijheid M, Sunyer J, Romaguera D. Association of lifestyle factors and neuropsychological development of 4-year-old children. Int J Environ Res Public Health. 2020 Aug 5;17(16):5668. doi: 10.3390/ijerph17165668

Penner I-K, McDougall F, Brown TM, Slota C, Doward L, Julian L, Belachew S, Miller D. Exploring the impact of fatigue in progressive multiple sclerosis: a mixed-methods analysis. Mult Scler Relat Disord. 2020 Aug;43:102207. doi: 10.1016/j.msard.2020.102207

Castan-Abad MT, Montserrat-Capdevila J, Godoy P, Marsal JR, Ortega M, Alseda M, Barbe F. Diabetes as a risk factor for severe exacerbation and death in patients with COPD: a prospective cohort study. Eur J Public Health. 2020 Aug 1;30(4):822-7. doi: 10.1093/eurpub/ckz219

Martin SA, Brown TM, Fehnel S, Deal LS, Katz EG, Chiou CF. The atopic dermatitis itch scale: development of a new measure to assess pruritus in patients with atopic dermatitis. J Dermatolog Trea. 2020 Aug;31(5):484-30708. doi: 10.1080/09546634.2020.1713971

DiBenedetti D, Slota C, Wronski SL, Vradenburg G, Comer M, Callahan LF, Winfield J, Rubino I, Krasa HB, Hartry A, Wieberg D, Kremer IN, Lappin D, Martin AD, Frangiosa T, Biggar V, Hauber B. Assessing what matters most to patients with or at risk for Alzheimer's and care partners: a qualitative study evaluating symptoms, impacts, and outcomes. Alzheimers Res Ther. 2020 Jul 30;12(90). doi: 10.1186/s13195-020-00659-6