Publications

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Displaying 51 through 89 of 89 publications.

Lewis S, Wray SE, Evans E, Romano (DeMuro) C, Bartolome L, Su W, Shah R, Russo PA. Patients' experiences in transitioning to secondary progressive multiple sclerosis: qualitative interviews. Neurol Ther. 2021 Dec;10(2):887-904. doi: 10.1007/s40120-021-00265-0

Vila-Guilera J, Parikh P, Chaturvedi H, Ciric L, Lakhanpaul M. Towards transformative WASH: an integrated case study exploring environmental, sociocultural, economic and institutional risk factors contributing to infant enteric infections in rural tribal India. BMC Public Health. 2021 Jul 6;21(1):1331. doi: 10.1186/s12889-021-11353-z

Shields GE, Brown L, Wells A, Capobianco L, Vass C. Utilising patient and public involvement in stated preference research in health: learning from the existing literature and a case study. Patient. 2021 Jul;14(4):399-412. doi: 10.1007/s40271-020-00439-2

Herring WL, Mauskopf J. Persistent challenges in Alzheimer's disease modeling: pragmatic solutions to inform the road forward. Poster presented at the 2020 Alzheimer's Association Virtual International Conference (AAIC); July 2020.

DiBenedetti D, Soliman AM, Gupta C, Surrey ES. Patients' perspectives of endometriosis-related fatigue: qualitative interviews. J Patient Rep Outcomes. 2020 May 6;4(1):33. doi: 10.1186/s41687-020-00200-1

McSweeney L, Breckons M, Fattakhova G, Oluboyede Y, Vale L, Ternent L, Balp M-M, Doward L, Brass CA, Beyer F, Sanyal A, Anstee QM. Health-related quality of life and patient-reported outcome measures in NASH-related cirrhosis. JHEP Rep. 2020 Mar 6;2(3). doi: 10.1016/j.jhepr.2020.100099

Doherty K, Barry M, Belisario JM, Morrison C, Car J, Doherty G. Personal information and public health: design tensions in sharing and monitoring wellbeing in pregnancy. Int J Hum Comput Stud. 2020 Mar;135:102373. doi: 10.1016/j.ijhcs.2019.102373

Hudiburgh L, Garbinsky D. Data visualization: bringing data to life in an introductory statistics course. J Stat Educ. 2020;28(3):262-79. doi: 10.1080/10691898.2020.1796399

Vickers A. An evaluation of survival curve extrapolation techniques using long-term observational cancer data. Med Decis Making. 2019 Nov;39(8):926-38. doi: 10.1177/0272989X19875950

Barrett A, Hahn-Pedersen J, Kragh N, Evans E, Gnanasakthy A. Patient-reported outcome measures in atopic dermatitis and chronic hand eczema in adults. Patient. 2019 Oct;12(5):445-9. doi: 10.1007/s40271-019-00373-y

Crawford R, Sully K, Conroy R, Johnson C, Doward L, Bell T, Welch V, Peloquin F, Gater A. Patient-centered insights on treatment decision making and living with acute myeloid leukemia and other hematologic cancers. Patient. 2019 Aug 28. doi: 10.1007/s40271-019-00384-9

Costello J, Njue A, Lyall M, Heyes A, Mahler N, Philbin M, Nazareth T. Efficacy, safety, and quality-of-life of treatments for acute relapses of multiple sclerosis: results from a literature review of randomized controlled trials. Degener Neurol Neuromuscul Dis. 2019 Jul 1;9:55-78. doi: 10.2147/DNND.S208815

Crawford R, Bell T, Rushton R, Doward L. A critique of YouTube™ as a data source for the qualitative exploration of patient-reported information on acute myeloid leukemia. Poster presented at the 2018 ISPOR 21st Annual European Congress; November 13, 2018. Barcelona, Spain.

DiBenedetti DB, Brown TM, DeMuro CJ, Ervin C, Lewis SA, Fehnel SE. Conducting patient interviews within a clinical trial setting. RTI Press. 2018 Aug. doi: 10.3768/rtipress.2018.op.0054.1808

Arana A. ENCePP Guide on methodological standards in pharmacoepidemiology, revision 7. 2018.

Pearson I, Rothwell B, Olaye A, Knight C. Economic modeling considerations for rare diseases. Value Health. 2018 May;21(5):515-24.

Price MA, Richardson D. Value of conducting feasibility studies in observational research. Presented at the 9th Annual SCOPE Summit Conference; February 13, 2018. Orlando, FL.

Calancie L, Anderson S, Branscomb J, Apostolico AA, Hassmiller Lich K. Using behavior over time graphs to spur systems thinking among public health practitioners. Prev Chronic Dis. 2018 Feb 1;15:E16. doi: 10.5888/pcd15.170254

Weinrib R, Minnis A, Agot KA, Ahmed K, Owino F, Manenzhe K, Cheng H, van der Straten A. End-users' product preference across three multipurpose prevention technology delivery forms: baseline results from young women in Kenya and South Africa. AIDS Behav. 2018 Jan;22(1):133-45. doi: 10.1007/s10461-017-1911-6

Fischer A, Zimovetz E, Ling C, Esser D, Shoof N. Humanistic and cost burden of systemic sclerosis: a review of the literature. Autoimmun Rev. 2017 Nov;16(11):1147-54. doi: 10.1016/j.autrev.2017.09.010

Wheeler AC, Sacco P, Cabo R. Unmet clinical needs and burden in Angelman syndrome: a review of the literature. Orphanet J Rare Dis. 2017 Oct 16;12(1):164. doi: 10.1186/s13023-017-0716-z

Davis KH, Su J, Gonzalez JM, Trudeau JT, Nelson LM, Hauber B, Hollis KA. Quantifying the importance of inhaler attributes corresponding to items in the patient satisfaction and preference questionnaire in patients using Combivent Respimat. Health Qual Life Outcomes. 2017 Oct 16;15(1):201. doi: 10.1186/s12955-017-0780-z

Demeyin (Nuabor) WA, Frost J, Ukoumunne OC, Briscoe S, Britten N. N of 1 trials and the optimal individualisation of drug treatments: a systematic review protocol. Syst Rev. 2017 Apr 24;6(1):90. doi: 10.1186/s13643-017-0479-6

Copley-Merriman C, Zelt S, Clark M, Gnanasakthy A. Impact of measuring patient-reported outcomes in dermatology drug development. Patient. 2017 Apr;10(2):203-13. doi: 10.1007/s40271-016-0196-6

Llorca PM, Lancon C, Hartry A, Brown TM, DiBenedetti DB, Kamat SA, Francois C. Assessing the burden of treatment-emergent adverse events associated with atypical antipsychotic medications. BMC Psychiatry. 2017 Feb 13;17:67. doi: 10.1186/s12888-017-1213-6

Elroy PW, Ronquest NA, Barnes A, Nadipelli VR, Akehurst R. Evaluating the effectiveness of treatments of opioid use disorder based on recovery outcomes: how to bridge the disconnect between clinical trial outcomes and recovery outcomes? Poster presented at the 2016 ISPOR 19th Annual European Congress; October 2016. Vienna, Austria. [abstract] Value Health. 2016 Nov; 19(7):A361.

DiBenedetti DB, Brown TM, Danchenko N. Assessing patient and caregiver experiences with symptoms and behaviors associated with schizophrenia. J Depress Anxiety. 2016 Jul 17;5(3):240. doi: 10.4200/2167-1044.1000240

Wald JS, Vishwanath NS, Shrestha M, Poulos C, Simon L, Vijayakumar G. Supporting diabetes medication understanding and adherence through a health literacy intervention, Meducation, in Kerala, India. In: LaBresh K, editors. Improving outcomes for noncommunicable diseases in low- and middle-income countries. Publication No. Bk-0017-1608 ed. Research Triangle Park: NC. RTI Press Publication; 2016. p.61-78. doi: 10.3768/rtipress.2016.bk.0017.1608

Cooley P, Rogers SM, Poulos C, Scruggs MD, Rineer JI, Wheaton WD, Allaire BT, Wagener DK. Microsimulation models to assess impact of health programs to address obesity and low birth weight in Indonesia. In: K. LaBresh, editors. Improving outcomes for noncommunicable diseases in low- and middle-income countries. Publication No. Bk-0017-1608 ed. Research Triangle Park: NC. RTI Press Publication; 2016. p.35-60. doi: 10.3768/rtipress.2016.bk.0017.1608

Puig-Barbera J, Tormos A, Trushakova S, Sominina A, Pisareva M, Ciblak MA, Badur S, Yu H, Cowling BJ, Burtseva E, GIHSN Group. The Global Influenza Hospital Surveillance Network (GIHSN): a new platform to describe the epidemiology of severe influenza. Influenza Other Respi Viruses. 2015 Jul 21. doi: 10.1111/irv.12335

Heller S, Lawton J, Amiel S, Cooke D, Mansell P, Brennan A, Elliott J, Boote J, Emery C, Baird W, Basarir H, Beveridge S, Bond R, Campbell M, Chater T, Choudhary P, Clark M, de Zoysa N, Dixon S, Gianfrancesco C, Hopkins D, Jacques R, Kruger J, Moore S, Oliver L, Peasgood T, Rankin D, Roberts S, Rogers H, Taylor C, Thokala P, Thompson G, Ward C. Improving management of type 1 diabetes in the UK: the Dose Adjustment For Normal Eating (DAFNE) programme as a research test-bed. A mixed-method analysis of the barriers to and facilitators of successful diabetes self-management, a health economic analysis, a cluster randomised controlled trial of different models of delivery of an educational intervention and the potential of insulin pumps and additional educator input to improve outcomes. Programme Grants Appl Res. 2014 Dec;2(5). doi: 10.3310/pgfar02050

Colosia A, Njue A, Trask PC, Olivares R, Khan S, Abbe A, Police R, Wang J, Ruiz-Soto R, Kaye JA, Awan F. Clinical efficacy and safety in relapsed/refractory diffuse large B-cell lymphoma: a systematic literature review. Clin Lymphoma Myeloma Leuk. 2014 Oct;14(5):343-55. doi: 10.1016/j.clml.2014.02.012

Slota C, Ulrich C, Miller-Davis C, Baker K, Wallen G. Qualitative inquiry: a method for validating patient perceptions of palliative care while enrolled on a cancer clinical trial. BMC Palliat Care. 2014 Sep 5;13:43. doi: 10.1186/1472-684X-13-43.

Gascon M, Sunyer J, Martinez D, Guerra S, Lavi I, Torrent M, Vrijheid M. Persistent organic pollutants and children's respiratory health: the role of cytokines and inflammatory biomarkers. Environ Int. 2014 Aug;69:133-40. doi: 10.1016/j.envint.2014.04.021

Andrews EB, Davis KH, DiBenedetti DB, Forsyth B, Gilsenan AW, Hollis KA, Lewis SA, Price MA, Tennis P, Zografos LJ. Risk evaluation and mitigation strategy assessments: social science methodologies to assess goals related to knowledge. 2014. Research Triangle Park: RTI Press.

Lewis S, Price M, Mordin M, Dwyer K, Heekin R, Yates P, O'Brien S, Beverland D. Assessing performance following primary total knee arthroplasty: development of the patient's knee implant performance (PKIP) measure. Poster presented at the 2012 ISPOR 17th Annual International Meeting; June 7, 2012. [abstract] Value Health. 2012 Jun 1; 15(4):A70.

Gnanasakthy A, Mordin M, Clark M, DeMuro C, Fehnel S, Copley-Merriman C. A review of patient-reported outcome labels in the United States: 2006 to 2010. Value Health. 2012 May;15(3):437-42. doi: 10.1016/j.jval.2011.11.032

DeMuro C, Mordin M, Evans ED, Copley-Merriman K, Fehnel S, Gnanasakthy A. Reasons for rejection of PRO label claims: an analysis based on a review of PRO use among new molecular entities and biologic license applications 2006–2010. Poster presented at the 2011 ISPOR 16th Annual International Meeting; June 3, 2011. [abstract] Value Health. 2011 May; 14(3):A29.

Gascon M, Vrijheid M, Martinez D, Forns J, Grimalt JO, Torrent M, Sunyer J. Effects of pre and postnatal exposure to low levels of polybromodiphenyl ethers on neurodevelopment and thyroid hormone levels at 4 years of age. Environ Int. 2011 Apr;37(3):605-11. doi: 10.1016/j.envint.2010.12.005