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Publications
Sutton Norman K Patient and clinician perspectives of care interactions for complicated urinary tract infections to inform implementation of patient-reported outcome measures: a qualitative descriptive study
Kosa K Qualitative interview study to characterize the treatment experiences of participants with sickle cell disease and assess perceptions of red blood cell transfusions
Druce KL The epidemiology of psoriatic arthritis in the UK: a health intelligence analysis of UK primary care electronic health records 1991-2020
Howard-Anderson JR, Brown M, Korn RE, Miller J, Norman Sutton K Comparing patient and clinician perceptions of health-related quality of life in hospitalized patients with complicated urinary tract infections: a qualitative descriptive study
van der Veer SN, Griffiths-Jones D, Parkes M, Druce KL Remote monitoring of rheumatoid arthritis (REMORA): study protocol for a stepped wedge cluster randomized trial and process evaluation of an integrated symptom tracking intervention
Percy AK, Neul JL, Benke TA, Berry-Kravis EM, Glaze DG, Marsh ED, Barrett AM Trofinetide for the treatment of Rett syndrome: long-term safety and efficacy results of the 32-month, open-label LILAC-2 study
Blauvelt A, Reckleff J, Zhao Y, Clark M Kosa K Harris N Martin S Whalley D Content evaluation of pruritus, skin pain and sleep disturbance patient-reported outcome measures for adolescents and adults with moderate-to-severe atopic dermatitis: qualitative interviews
Yap C, Aiyegbusi OL, Alger E, Basch E, Bell J, Bhatnagar V, Cella D, Collis P, Dueck AC, Gilbert A, Gnanasakthy A Advancing patient-centric care: integrating patient reported outcomes for tolerability assessment in early phase clinical trials – insights from an expert virtual roundtable
Bhushan NL, DeMuro Romano C Rockwood N McLeod L Remote-use applications of the amyotrophic lateral sclerosis functional rating scale-revised clinical outcome assessment tool: a scoping review 10.1016/j.jval.2024.05.005
Clevenger C, Brubaker M, Jackson WC, Stroud J, Peschin S, Fehnel S Brown TM Bratlee-Whitaker E Study protocol: quantitative evaluation of the Agitation in Alzheimer's screener for caregivers (AASC™), a novel tool for improving recognition of agitation in Alzheimer's dementia
Kessler AS, Brown TM Bratleey-Whitaker E Fehnel S Patient experience with familial chylomicronemia syndrome before and after olezarsen treatment: qualitative interviews with clinical trial participants
Kessler AS, Brown TM Bratlee-Whitaker E Fehnel S Patient experience with familial chylomicronemia syndrome before and after olezarsen treatment: qualitative interviews with clinical trial participants 10.1016/j.jacl.2024.04.105
Norman K Perspectives of telehealth and the impact on equity in access to health care from community members and healthcare providers: a multimethod analysis
Norman K A systematic review of patient-reported health-related quality of life measurement in patients with acute bacterial skin and skin structure infection
Martin S Kosa K Qualitative interviews describing the patient experience of individuals with generalized lipodystrophy enrolled in a clinical trial of mibavademab
Roth CL, Shoemaker AH, Ervin C Norcross L Fehnel S Patient- and caregiver-reported experiences of hunger, weight, and energy in acquired yypothalamic obesity before and during setmelanotide treatment
Potashman MH, Rudell K, Abetz-Webb L, Suminski N, Gold A, Doma R, Jarodia K, Buckley C, Ridley M Understanding lived experiences with KCNQ2-development and epileptic encephalopathy (KCNQ2-DEE) - parent interviews
Simpson EL, Eckert L, Gadkari A, Brown TM Nelson L Fehnel SE Evaluating the clinical utility of the Atopic Dermatitis Control Tool: measurement properties and agreement between patients' responses and clinicians' impressions of atopic dermatitis control 10.1093/bjd/ljae056
Kimpel CC, Myer EA Identifying barriers and facilitators to veterans affairs whole health integration using the updated consolidated framework for implementation research 10.1097/JHQ.0000000000000419
