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Publications
Romano (DeMuro) C , Bratlee-Whhitaker E , Hartry A, Mearns E, Taylor J, Taylor G, Callahan L, Monks D, Kremer I, Lappin D, Frangiosa T, Sangodkar S, Herring WL , Gnanasakthy K , Goss D , McLeod L , Edwards T , Poulos C , DiBenedetti D , Paulsen R. Measuring what matters most to people living with Alzheimer's disease and care partners: what matters most quantitative research development . Poster presented at the Alzheimer's Association International Conference (AAIC) 2024; July 31, 2024. Philadelphia, PA.
Clevenger C, Brubaker M, Jackson WC, Stroud J, Peschin S, Fehnel S , Brown TM , Bratlee-Whitaker E , Bucior I, Patel M, Grossberg G. Study protocol: quantitative evaluation of the Agitation in Alzheimer's screener for caregivers (AASC™), a novel tool for improving recognition of agitation in Alzheimer's dementia . Poster presented at the Alzheimer's Association International Conference (AAIC) 2024; July 28, 2024. Philadelphia, PA.
Clevenger C, Brubaker M, Patel M, Cummings J, Jackson WC, Stroud C, Pechin S, Bratlee-Whitaker E , Brown TM , Fehnel S , Grossberg G. One minute to recognition: the agitation in Alzheimer's screener for caregivers (AASC) . Poster presented at the Gerontological Society of America's 2023 Annual Scientific Meeting; November 10, 2023. Tampa, FL.
Halsby K, Gildea L , Colosia A , Madhava H, Erber W, Angulo F, Pilz A, Schley K, Moisi J, Sellner J. The clinical spectrum of TBE infections in adult and paediatric populations in Europe: a systematic review . Poster presented at the International Symposium on Tick-Borne Pathogens and Disease (ITPD) 2023; October 24, 2023. Vienna, Austria.
Romano (DeMuro) C , Bratlee-Whitaker E , Herring WL , Callahan L, Raimundo K, Taylor J, Taylor G, Kremer I, Lappin D, Frangiosa T, Gnanasakthy K , Goss D , Paulsen R, Hartry A, DiBenedetti D . Measuring what matters most to people living with Alzheimer's disease and care partners: what matters most qualitative research . Poster presented at the 16th Clinical Trials on Alzheimer's Disease (CTAD); October 24, 2023. Boston, MA.
Fehlmann B, Thomann A, Davies E, Twiss J , Romano C , Whalley D , Mayorga M , Levy C , Lipsmeier F, Popp W, Kustermann T, Svoboda H, Nikolcheva T, Trundell D, Lindemann M, Taylor K. Patient perspectives on symptoms and functional impacts to inform a digital assessment of Parkinson's disease . Poster presented at the 2023 International Congress of Parkingson's Disease and Movement Disorders; August 27, 2023. Copenhagen, Denmark.
Romano CD , Slota C , Bratlee-Whitaker E , Edwards T , Herring WL , McLeod L , Callahan L, Bullok K, Raimundo K, Taylor J, Taylor G, Kremer I, Monks D, Lappin D, Frangiosa T, Gnanasakthy K , Goss D , Comer M, Paulsen R, Hartry A, DiBenedetti D . Measuring "What Matters Most™" to individuals living with Alzheimer's disease and care partners: a conceptual model of Alzheimer's disease . Poster presented at the AAIC 2023 Conference; July 16, 2023. Amsterdam, Netherlands.
Clinch S, Whalley D , Ahlers S, Klupp S, Chague J, Holt T, Asadska G, Nelson L , Levy C , Staunton H. Cross-sectional and longitudinal psychometric evaluation of the pediatric quality of life inventory generic core module in autism . Poster presented at the International Society for Autism Research (INSAR) 2023; May 5, 2023. Stockholm, Sweden.
Hellwig K, Magyari M, McDonald T, Gembert K, Wergeland S, Leinonen MK, Aydemir A, Sabido M, Kawai A , Arana A . A multi-country cohort database study to assess pregnancy and infant outcomes in women exposed to cladribine tablets: CLEAR study . Poster presented at the 2021 Digital 37th Conference of the European Committee for Treatment and Research in Multiple Sclerosis (ECTRIMS); October 13, 2021.
Hartry A, Menne H, Wronski S, Paulson R, Callahan L, Potashman M, Lee D, Wunderlich G, Hoffman D, Wieberg D, Kremer I, Hauber B, DiBenedetti D . Evaluation of what matters most in existing clinical outcomes assessments in Alzheimer's Disease . Poster presented at the 2020 Alzheimer's Association Virtual International Conference (AAIC); July 29, 2020.
Hauber B, Paulsen R, Callahan L, Potashman M, Lee D, Hartry A, Wunderlich G, Hoffman D, Wieberg D, Kremer I, DiBenedetti D . Quantifying what matters most to patients and care partners in Alzheimer's Disease . Poster presented at the 2020 Alzheimer's Association Virtual International Conference (AAIC); July 29, 2020.
Majid T, Paulsen R, Callahan L, Potashman M, Lee D, Hartry A, Wunderlich G, Hoffman D, Wieberg D, Kremer I, Hauber B, DiBenedetti D . The importance of care partner input in Alzheimer's Disease (AD) drug development . Poster presented at the 2020 Alzheimer's Association Virtual International Conference (AAIC); July 27, 2020.
Hauber B, DiBenedetti D , Vradenburg G, Callahan L, Potashman M, Krasa H, Hartry A, Wunderlich G, Hoffman D, Wieberg D, Kremer I. Identifying what matters to people with and at risk for Alzheimer's disease and their care partners: concept elicitation and item development . Poster presented at the 12th Clinical Trials in Alzheimer’s Disease (CTAD) Meeting; December 6, 2019. San Diego, CA.
Vradenburg G, DiBenedetti DB , Hauber B, Slota C , Wronski SL, Comer M, Callahan LF, Winfield J, Rubino I, Krasa HB, Hartry A, Wieberg BA, Kremer IN, Lappin D, Martin AD, Frangiosa T, Biggar V. Findings from the Alzheimer' Disease Patient and Caregiver Engagement (AD PACE) initiative's what matters most qualitative study . Poster presented at the 2019 Alzheimer's Association International Conference (AAIC); July 17, 2019. Los Angeles, CA.
Margulis A , Andrews E, Hernandez-Diaz S, Magyari M, Rivero-Ferrer E , Bader-Weder S, Evershed J, Garas M, Wang Q, Wormser D. Design of a multi-source post-marketing study to evaluate pregnancy and infant outcomes in women with multiple sclerosis who were exposed to ocrelizumab during, or within 6 months before, pregnancy . Poster presented at the 2018 American Academy of Neurology Annual Meeting; April 25, 2018. Los Angeles, CA.
Herring W , Zhang Y, Pearson I , Tempest M, Freudensprung U, Acosta C, Hyde R, Spelman T, Butzkueven H. A cost-effectiveness analysis using real-world data from the MSBase registry: comparing natalizumab to fingolimod in patients with inadequate response to disease modifying therapies in relapsing-remitting multiple sclerosis in Scotland . Poster presented at the 7th Joint ECTRIMS-ACTRIMS Meeting; October 26, 2017. Paris, France.
Mansfield C , Bullok KE, Fuhs JV, Kahle-Wrobleski K, Tockhorn-Heidenreich A, Andrews JS, DiBenedetti DB , Matthews BR, Darling JC, Siemers ER, Hauber AB. The patient voice: exploring treatment preferences in participants with mild cognitive concerns to inform regulatory decision-making . Poster presented at the 2017 Alzheimer’s Association International Conference; July 19, 2017. London, United Kingdom.
Williams V , Coles T, DeMuro C , Lewis S , Williams N, Yarr S , Barghout V, Lowes L, Alfano L, Goldberg B, Gnanasakthy A , Tseng B. Psychometric evaluation of the Sporadic Inclusion Body Myositis (sIBM) Physical Functioning Assessment (sIFA) . Poster presented at the 1st Annual International Conference on Myositis; May 2015. Stockholm, Sweden.