Publications

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Displaying 1 through 50 of 96 publications.

Witherspoon DP, Wei W, May EM, Boggs S, Chancy D, Bamaca-Colbert MY, Bhargava S. Latinx youth's ethnic-racial identity in context: examining ethnic-racial socialization in a new destination area. J Soc Issues. 2021 Dec 22;77(4):1234-56. doi: 10.1111/josi.12492

Garland SN, Savard J, Eisel SL, Wassersug RJ, Rockwood NJ, Thoms J, Jim HSL, Gonzalez BD. A 2‐year prospective analysis of insomnia as a mediator of the relationship between androgen deprivation therapy and perceived cognitive function in men with prostate cancer. Cancer. 2021 Dec 15;127(24):4656-64. doi: 10.1002/cncr.33850

Weiss C, Meehan SR, Brown TM, Gupta C, Morup MF, Thase ME, McIntyre RS, Ismail Z. Effects of adjunctive brexpiprazole on calmness and life engagement in major depressive disorder: post hoc analysis of patient-reported outcomes from clinical trial exit interviews. J Patient Rep Outcomes. 2021 Dec 11;5(1):128. doi: 10.1186/s41687-021-00380-4.

Osborne R, Nelson L, Fehnel S, Williams N, Bender RH, Ziemiecki R, Gymnopoulou E, De Paepe E, Norcross L, Heijnen E, Ispas G, Cheret A, Comeaux C, Callendret B, Vandendijck Y, Chan E, Scott J. Measurement of symptoms in respiratory syncytial virus–infected adults: meaningful within-patient change thresholds for the respiratory infection intensity and impact questionnaire (RiiQ). Poster presented at the 8th ESWI Influenza Conference Scientific and SPI Virtual Programme; December 4, 2021.

Boyett B, Wiest K, McLeod LD, Nelson LM, Bickel WK, Learned SM, Heidbreder C, Fudala PJ, Le Moigne A, Zhao Y. Assessment of craving in opioid use disorder: psychometric evaluation and predictive validity of the opioid craving VAS. Drug Alcohol Depend. 2021 Dec 1;229(Pt B):109057. doi: 10.1016/j.drugalcdep.2021.109057

Park EM, Deal AM, Yopp JM, Chien SA, McCabe S, Hirsch A, Bowers SM, Edwards T, Rosenstein DL. Parenting through grief: a cross-sectional study of recently bereaved adults with minor children. Palliat Med. 2021 Dec;35(10):1923-32. doi: 10.1177/02692163211040982

Martin SA, Meckley LM, Harris NI, Chen KS, Leffler DA. Symptom assessment in adolescents and adults with celiac disease. Poster presented at the Virtual ISPOR Europe 2021; December 1, 2021. [abstract] Value Health. 2021 Dec; 24(12):S2.

DeMuro C. Two years of COVID-19: what has been the global impact on HRQoL and clinical outcomes? Presented at the Virtual ISPOR Europe 2021; November 2021. [abstract] Value Health. 2021 Dec; 24(12):S2.

Lewis S, Wray SE, Evans E, Romano (DeMuro) C, Bartolome L, Su W, Shah R, Russo PA. Patients' experiences in transitioning to secondary progressive multiple sclerosis: qualitative interviews. Neurol Ther. 2021 Dec;10(2):887-904. doi: 10.1007/s40120-021-00265-0

Lennon RP, Zgierska AE, Miller EL, Snyder B, Keshaviah A, Hu XC, Zhou H, Van Scoy LJ. Lower intent to comply with COVID-19 public health recommendations correlates to higher disease burden in following 30 days. South Med J. 2021 Dec;114(12):744-50. doi: 10.14423/SMJ.0000000000001332

Joly F, DasMahapatra P, Su J, DiBenedetti D, Kosa K, Hill Q. Development of a cold Agglutinin disease-specific patient-reported outcome symptom measure. Poster presented at the 2021 63rd American Society of Hematology (ASH) Annual Meeting & Exposition; December 13, 2021. [abstract] Blood. 2021 Nov 23; 138(supplement 1):4057. doi: 10.1182/blood-2021-147199

Lennon R, Calo W, Miller E, Zgierska A, Van Scoy L, Fraleigh R. Using artificial intelligence to support rapid, mixed-methods analysis: developing an Automated Qualitative Assistant (AQUA). Presented at the Virtual 49th North American Primary Care Research Group (NAPCRG) Annual Meeting; November 22, 2021.

DiBenedetti D, Mansfield C, Myers K, Satram S, Reyes C. Understanding patient experiences with chronic Hepatitis B Virus (cHBV) and its treatments. Poster presented at the AASLD 2021 The Liver Meeting; November 12, 2021. Previously presented at the Virtual ISPOR 2021 Conference.

Herrera-Restrepo O, Ghaswalla P, Davis K, Sweeney C, Davenport E, Andani A, Buck PO. What can Europe learn from HCP knowledge and attitudes towards hepatitis A vaccination in the US? Poster presented at the 14th European Public Health Virtual Conference 2021 (EPH); November 10, 2021.

Li D, Darden C, Sayeed S, Jackson L, Garbinsky D, Osman N. Patient-reported clinical and productivity outcomes from the longitudinal telotristat ethyl treatment registry. Poster presented at the 2021 Virtual Annual Symposium of the North American Neuroendocrine Tumor Society (NANETS); November 3, 2021.

Lennon RP, Demetriou TJ, Khalid MF, Van Scoy LJ, Miller EL, Dong H, Zgierska AE. Characteristics and outcomes among hospitalized COVID-19-positive patients in a nonurban environment. Mil Med. 2021 Nov 2;186(11-12):1088-92. doi: 10.1093/milmed/usab044

Hill NL, Bratlee-Whitaker E, Sillner A, Brautigam L, Mogle J. Help-seeking for cognitive problems in older adults without dementia: a systematic review. Int J Nurs Stud Adv. 2021 Nov;3. doi: 10.1016/j.ijnsa.2021.100050

Bratlee-Whitaker E, Hill NL, Wion RK, Madrigal C, Bhargava S, Mogle J. Factors that influence the emotional impact of memory problems in older adults: a mixed methods study. Poster presented at the Annual Scientific Meeting of the Gerontological Society of America; November 2021.

Lennon RP, Fraleigh R, Van Scoy LJ, Keshaviah A, Hu XC, Snyder BL, Miller EL, Calo WA, Zgierska AE, Griffin C. Developing and testing an automated qualitative assistant (AQUA) to support qualitative analysis. Fam Med Community Health. 2021 Nov;9(Suppl 1):e001287. doi: 10.1136/fmch-2021-001287

Carrillo N, Malicdan MC, Leoyklang P, Shrader JA, Joe G, Slota C, Perreault J, Heiss JD, Class B, Liu CY, Bradley K, Jodarski C, Ciccone C, Driscoll C, Parks R, Van Wart S, Bayman L, Coffey CS, Quintana M, Berry SM, Huizing M, Gahl WA. Safety and efficacy of N-acetylmannosamine (ManNAc) in patients with GNE myopathy: an open-label phase 2 study. Genet Med. 2021 Nov;23(11):2067-75. doi: 10.1038/s41436-021-01259-x

Gnanasakthy A. Editorial - FDA guidance on assessment of patient‑reported outcomes in cancer trials: a breath of fresh air or a storm in a teacup? Patient. 2021 Nov;14(6):695-7. doi: 10.1007/s40271-021-00542-y

George SZ, Fritz JM, Silfies SP, Schneider MJ, Beneciuk JM, Lentz TA, Gilliam JR, Hendren S, Norman KS. Interventions for the management of acute and chronic low back pain: revision 2021. J Orthop Sports Phys Ther. 2021 Nov;51(11):CPG1-CPG6. doi: 10.2519/jospt.2021.0304

Clinch S, McDougall F, Barrett A, Olayinka-Amao B, Craveiro L, Baker M, Lindemann M. Understanding MS symptoms and impacts through semi-structured interviews with clinical experts and people living with MS. Poster presented at the 2021 CMSC Annual Meeting; October 25, 2021. Orlando, FL.

Clinch S, McDougall F, Barrett A, Olayinka-Amao B, Craveiro L, Baker M, Lindemann M. A patient-focused qualitative study to support content validity of digital performance assessments in MS. Poster presented at the 2021 ECTRIMS Annual Congress; October 13, 2021. [abstract] Mult Scler J Exp Transl Clin. 2021 Oct 21; 27(2 Suppl):329. doi: 10.1177/13524585211044667

Arigo D, Mogle JA, Brown MM, Gupta A. A multi-study approach to refining ecological momentary assessment measures for use among midlife women with elevated risk for cardiovascular disease. Mhealth. 2021 Oct 20;7:53. doi: 10.21037/mhealth-20-143

Park EM, Wang M, Bowers SM, Muriel AC, Rauch PK, Edwards T, Yi SM, Daniel B, Hanson LC, Song M-K. Adaptation and psychometric evaluation of the parenting concerns questionnaire-advanced disease. Am J Hosp Palliat Care. 2021 Oct 7. doi: 10.1177/10499091211049801

Ervin C, Crawford R, Evans E, Feldman SR, Zeichner J, Zielinski M, Cappelleri JC, DiBonaventura M, Takiya L, Myers DE. Patient and caregiver preferences on treatment attributes for atopic dermatitis. J Dermatolog Trea. 2021 Oct 6;1-9. doi: 10.1080/09546634.2021.1940810

Gold BD, Goodwin B, Davis K, Sweeney C, Ziemiecki R, Jiang J, Fan T, Boules M, Desai NK, Katzka DA. Patient satisfaction and adherence to corticosteroids in adolescents and adults with eosinophilic esophagitis in a real-world setting in the US. Poster presented at the 2021 Annual Scientific Meeting & Postgraduate Course (ACG); October 24, 2021. Las Vegas, NV. [abstract] Am J Gastroenterol. 2021 Oct; 116:S177.

Gold BD, Goodwin B, Davis K, Sweeney C, Reynolds M, Jiang J, Fan T, Boules M, Desai NK, Katzka DA. Health-related quality of life in adolescents and adults with eosinophilic esophagitis in a real world setting in the US. Poster presented at the 2021 Annual Scientific Meeting & Postgraduate Course (ACG); October 24, 2021. Las Vegas, NV. [abstract] Am J Gastroenterol. 2021 Oct; 116:S176. doi: 10.14309/01.ajg.0000774068.59482.1e

Gold BD, Goodwin B, Davis K, Sweeney C, Garbinsky D, Jiang J, Fan T, Boules M, Desai NK, Katzka DA. Perceptions of disease stigma in adolescents and adults with eosinophilic esophagitis in the US. Poster presented at the 2021 Annual Scientific Meeting & Postgraduate Course (ACG); October 24, 2021. Las Vegas, NV. [abstract] Am J Gastroenterol. 2021 Oct; 116:S176-7. doi: 10.14309/01.ajg.0000774072.42679.92

Gold BD, Goodwin B, Davis K, Sweeney C, Reynolds M, Jiang J, Fan T, Boules M, Desai NK, Katzka DA. Treatment burden and associated costs in adolescents and adults with eosinophilic esophagitis in the USA. Poster presented at the AMCP Nexus 2021; October 19, 2021. [abstract] J Manag Care Pharm. 2021 Oct; 27(10-a):S82.

Kolotkin RL, Williams VSL, von Huth Smith L, Meincke HH, Qin S, Williams N, Fehnel SE. Confirmatory psychometric evaluations of the impact of weight on quality of life-lite clinical trials version (IWQOL-Lite-CT). Clin Obes. 2021 Oct;11(5):e12477. doi: 10.1111/cob.12477

Doward L, Twiss J, Breckons M, Balp MM, Pettersson B, McSweeney L, Oluboyede Y, Vale L, Brass C, Anstee QM, Sanyal AJ. Evaluation of the NASH-CHECK patient-reported outcome instrument for patients with nonalcoholic steatohepatitis (NASH) with compensated cirrhosis. Poster presented at the AASLD Liver Meeting; November 12, 2021. Anaheim, CA. [abstract] Hepatology. 2021 Oct 1; 74(S1):1007A. doi: 10.1002/hep.32188

Arigo D, Mogle JA, Smyth JM. Relations between social comparisons and physical activity among women in midlife with elevated risk for cardiovascular disease: an ecological momentary assessment study. J Behav Med. 2021 Oct;44(5):579-90. doi: 10.1007/s10865-021-00229-7

Ervin C, Mangalindan A, Shapouri S, Sutphin J, Mansfield C, Manzoor BS, Sail K, Dine J. What drives treatment preferences in CLL? Listening to the patient voice. Poster presented at the 2021 Virtual iwCLL International Workshop; September 17, 2021.

Hill NL, Mogle J, Bhargava S, Bratlee-Whitaker E, Wion RK, Sweeder L, Sliwinski M, Barnes LL. Within-person associations among self-perceptions of memory, depressive symptoms, and activity participation in older adults. Gerontologist. 2021 Sep 13;61(7):1107-17. doi: 10.1093/geront/gnaa208

Mmbaga B, Shayo M, Ngowi K, Shayo P, Haukila K, Allen K, Goode A, Burke C, Norman K, Bettger JP. Transforming care for musculoskeletal pain in Northern Tanzania. Poster presented at the Healthy Longevity Global Competition Innovator Summit; September 13, 2021. Virtual.

Greaney JL, Darling AM, Turner JR, Saunders EFH, Almeida DM, Mogle J. COVID-19-related daily stress processes in college-aged adults: examining the role of depressive symptom severity. Front Psychol. 2021 Sep 13;12:693396. doi: 10.3389/fpsyg.2021.693396

Darden C, Price M, Ray D, Goldstein G, Goss D, Bennett L, Garbinsky D, Thota R. Patients' satisfaction with long-acting injectable somatostatin analog therapy for neuroendocrine tumors. J Patient Rep Outcomes. 2021 Sep 7;5(1):82. doi: 10.1186/s41687-021-00355-5

Cox JS, Hinton EC, Sauchelli S, Hamilton-Shield JP, Lawrence NS, Brunstrom JM. When do children learn how to select a portion size? Appetite. 2021 Sep 1;164:105247. doi: 10.1016/j.appet.2021.105247

Zografos L, Calingaert B, Wolin D, Andrews E, Davis K, Nelson K, Lenz Y, Tarenz C, Horvat-Broecker A, Suzart-Woischnik K. Evaluating physician knowledge of risks and safe use of rivaroxaban. Poster presented at the Virtual ICPE 2021 Conference; August 23, 2021.

Trickey A, Nixon E, Christensen H, Finn A, Thomas A, Relton C, Montgomery C, Hemani G, Metz J, Walker JG, Turner K, Kwiatkowska R, Sauchelli S, Danon L, Brooks-Pollock E. University students and staff able to maintain low daily contact numbers during various COVID-19 guideline periods. Epidemiol Infect. 2021 Aug 10;149:e169. doi: 10.1017/S0950268821001618

Brod M, McLeod L, Markova D, Gianettoni J, Mourya S, Lin Z, Shu A, Smith A. Psychometric validation of the Hypoparathyroidism Patient Experience Scales (HPES). J Patient Rep Outcomes. 2021 Aug 10;5(1):70. doi: 10.1186/s41687-021-00320-2

Waltz M, Juengst ET, Edwards T, Henderson GE, Kuczynski KJ, Conley JM, Della-Penna P, Cadigan RJ. The view from the benches: scientists' perspectives on the uses and governance of human gene-editing research. CRISPR J. 2021 Aug;4(4):609-15. doi: 10.1089/crispr.2021.0038

Simpson EL, de Bruin-Weller M, Bansal A, Chen Z, Nelson L, Whalley D, Prescilla R, Guillemin I, Delevry D. Definition of clinically meaningful within-patient changes in POEM and CDLQI in children 6 to 11 years of age with severe atopic dermatitis. Dermatol Ther. 2021 Aug;11(4):1415-22. doi: 10.1007/s13555-021-00543-7

Charles ST, Mogle J, Chai HW, Almeida DM. The mixed benefits of a stressor-free life. Emotion. 2021 Aug;21(5):962-71. doi: 10.1037/emo0000958

Van Scoy LJ, Snyder B, Miller EL, Toyobo O, Grewel A, Ha G, Gillespie S, Patel M, Reilly J, Zgierska AE, Lennon RP. Public anxiety and distrust due to perceived politicization and media sensationalism during early COVID-19 media messaging. J Commun Healthc. 2021 Jul 31;14(3):193-205. doi: 10.1080/17538068.2021.1953934

Hatt CR, Brydges CR, Mogle JA, Sliwinski MJ, Bielak AAM. Evaluating the consistency of subjective activity assessments and their relation to cognition in older adults. Geriatrics. 2021 Jul 28;6(3):74. doi: 10.3390/geriatrics6030074

Hill NL, Bhargava S, Brown MJ, Kim H, Bhang I, Mullin K, Phillips K, Mogle J. Cognitive complaints in age-related chronic conditions: a systematic review. PLoS One. 2021 Jul 7;16(7):e0253795. doi: 10.1371/journal.pone.0253795

Van Scoy LJ, Miller EL, Snyder B, Wasserman E, Chinchilli VM, Zgierska AE, Rabago D, Lennon CL, Lipnick D, Toyobo O, Ruffin 4th MT, Lennon RP. Knowledge, perceptions, and preferred information sources related to COVID-19 among central Pennsylvania adults early in the pandemic: a mixed methods cross-sectional survey. Ann Fam Med. 2021 Jul;19(4):293-301. doi: 10.1370/afm.2674