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Publications
Ayoub I, Bensink ME, Zhou X Wang J Patient-reported outcomes in adults with FSGS: sparsentan vs. irbesartan
Wadhwani S, Bensink M, Peipert JD, Ayoub I, Preciado P, Garbinsky D Wang J Choi J Bennett L Patient-reported outcomes in the PROTECT clinical trial comparing sparsentan with irbesartan for IgA nephropathy
Haug U, Morales DR, Ehrenstein V, Esen BO, Didelez V, Schafer W, Reinbold J, Martinez D Garcia de Albeniz X Target trial emulation with real world evidence: regulatory grade pharmacoepidemiology in the SIGMA consortium
Weibel D, De Luise C, Cid Royo A, Ryan O, Vaz T, Aguado J Marsal J Garcia de Albeniz Martinez X Weinrib R Arana A Interim results from the VAC4EU Post-Authorization Safety Study (PASS) among recipients of the Pfizer-BioNTech COVID-19 (Comirnaty®) vaccine in Europe
Clevenger C, Brubaker M, Jackson WC, Stroud J, Peschin S, Fehnel S Brown TM Bratlee-Whitaker E Study protocol: quantitative evaluation of the Agitation in Alzheimer's screener for caregivers (AASC™), a novel tool for improving recognition of agitation in Alzheimer's dementia
Kessler AS, Brown TM Bratleey-Whitaker E Fehnel S Patient experience with familial chylomicronemia syndrome before and after olezarsen treatment: qualitative interviews with clinical trial participants
Kessler AS, Brown TM Bratlee-Whitaker E Fehnel S Patient experience with familial chylomicronemia syndrome before and after olezarsen treatment: qualitative interviews with clinical trial participants 10.1016/j.jacl.2024.04.105
Norman K Perspectives of telehealth and the impact on equity in access to health care from community members and healthcare providers: a multimethod analysis
Norman K A systematic review of patient-reported health-related quality of life measurement in patients with acute bacterial skin and skin structure infection
Taieb J, Fakih M, Salvatore L, Esaki T, Modest DP, Paez D, Karamouzis MV, Ruiz-Garcia E, Kim TW, Kuboki Y, Meriggi F, Cunningham D, Yeh KH, Cremolini C, Wang J Patient-reported tolerability of sotorasib (soto) and panitumumab (pani) versus trifluridine/tipiracil (T/T) or regorafenib (rego) in patients (pts) with metastatic colorectal cancer (mCRC) in the CodeBreaK 300 study
Martin S Kosa K Qualitative interviews describing the patient experience of individuals with generalized lipodystrophy enrolled in a clinical trial of mibavademab
Roth CL, Shoemaker AH, Ervin C Norcross L Fehnel S Patient- and caregiver-reported experiences of hunger, weight, and energy in acquired yypothalamic obesity before and during setmelanotide treatment
Potashman MH, Rudell K, Abetz-Webb L, Suminski N, Gold A, Doma R, Jarodia K, Buckley C, Ridley M Understanding lived experiences with KCNQ2-development and epileptic encephalopathy (KCNQ2-DEE) - parent interviews
Simpson EL, Eckert L, Gadkari A, Brown TM Nelson L Fehnel SE Evaluating the clinical utility of the Atopic Dermatitis Control Tool: measurement properties and agreement between patients' responses and clinicians' impressions of atopic dermatitis control 10.1093/bjd/ljae056
Kluge F, Brand YE, Mico-Amigo ME, Bertuletti S, D'Ascanio I, Gazit E, Bonci T, Kirk C, Kuderle A, Palmerini L, Paraschiv-Ionescu A, Salis F, Soltani A, Ullrich M, Alcock L, Aminian K, Becker C, Brown P, Buekers J, Carsin AE Real-world gait detection using a wrist-worn inertial sensor: validation study
Kimpel CC, Myer EA Identifying barriers and facilitators to veterans affairs whole health integration using the updated consolidated framework for implementation research 10.1097/JHQ.0000000000000419
Koch S, Peralta GP, Carsin AE Abellan A Physical activity and body mass related to catch-up lung function growth in childhood: a population-based accelerated cohort study 10.1136/thorax-2022-219666
Aiyegbusi OL, Cruz Rivera S, Roydhouse J, Kamudoni P, Alder Y, Anderson N, Baldwin RM, Bhatnagar V, Black J, Bottomley A, Brundage M, Cella D, Collis P, Davies EH, Denniston AK, Efficace F, Gardner A, Gnanasakthy A Recommendations to address respondent burden associated with patient-reported outcome assessment
Williams V, DeMuro Romano C Qin S Lewis S Psychometric evaluation of the respiratory syncytial virus infection, intensity and impact questionnaire (RSV-iiiQ) in adults
