Publications

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Displaying 101 through 150 of 1863 publications.

Armstrong AW, Jayade S, Rege S, Joshi N, Patel V, Kalirai S, Wolin D, Boyle K, Patel D, Seigel L. Evaluating treatment choice in patients with moderate to severe psoriasis in the United States: results from a US patient survey. Dermatol Ther. 2024 Feb;14(2):421-39. doi: 10.1007/s13555-023-01089-6

Craig T, Baptist A, Anderson J, Zaragoza-Urdaz R, Burnette A, Kelbel T, Riedl M, Vanegas A, Boyle K, Schultz B, Blair C, Sing K, Fox D, Juethner S. Patient-reported outcomes among patients with hereditary angioedema within underrepresented racial or ethnic groups. Poster presented at the 2024 American Academy of Allergy Asthma & Immunology (AAAAI) Annual Meeting; February 23, 2024. Washington, DC. [abstract] J Allergy Clin Immunol. 2024 Feb; 153(2):AB81.

Paller AS, Siegfried E, Marron SE, Clark M, DiBenedetti D, Nelson L, Chao J, Bansal A, Chuang CC, Wang Z. Development and validation of a caregiver-reported NumericRating Scale for measuring worst scratch/itch in patients aged 6 months to younger than 6 years with atopic dermatitis. J Am Acad Dermatol. 2024 Feb;90(2):382-5. doi: 10.1016/j.jaad.2023.08.104

Maeda-Chubachi T, McLeod L, Enloe C, Cartwright M, Siegfried E, Hebert AA, Silverberg N. Defining clinically meaningful improvement in molluscum contagiosum. J Am Acad Dermatol. 2024 Feb;90(2):443-5. doi: 10.1016/j.jaad.2023.10.033

Callahan LF, Samsell B, DiBenedetti D, Frangiosa T, Slota C, Biggar V, Paulsen R, Lappin D, Herring WL, Romano (DeMuro) C. Evaluating elements of the care partner experience in individuals who care for people with Alzheimer's disease across the severity spectrum. Neurol Ther. 2024 Feb;13(1):53-67. doi: 10.1007/s40120-023-00558-6

Hunter T, Sweeney C, Wolin D, McSorley D, Wang J, Koushik AK, Moses R, Dubinsky M. Real-world experience and perspectives on the treatment of ulcerative colitis: results from a healthcare provider survey. Poster presented at the Crohn's & Colitis 2024 Congress; January 26, 2024. Las Vegas, NV.

Rousculp MD, Hollis K, Ziemiecki R, Odom D, Marchese AM, Montazeri M, Odak S, Jackson L, Miller A, Toback S. Burden and impact of reactogenicity among adults receiving COVID-19 vaccines in the United States and Canada: results from a prospective observational study. Vaccines (Basel). 2024 Jan 13;12(1):83. doi: 10.3390/vaccines12010083

Burke CA, Seidler KJ, Rethorn ZD, Hoenig H, Allen K, Tabriz AA, Norman K, Murphy-McMillan LK, Sharpe J, Joseph LM, Dietch JR, Kosinski AS, Cantrell S, Gierisch JM, Ear B, Gordon A, Goldstein KM. Interventions to improve long-term adherence to physical rehabilitation: a systematic review. J Geriatr Phys Ther. 2024 Jan 12. doi: 10.1519/JPT.0000000000000402

Herrera-Restrepo O, Sweeney C, Mond T, Davenport E, Wang J, Marshall GS. Nurse practitioners' and physician assistants' knowledge, attitudes, and practices regarding meningococcal vaccination for healthy adolescents and young adults in the United States. J Nurse Pract. 2024 Jan;20(1):104793. doi: 10.1016/j.nurpra.2023.104793

Merola JF, Werth V, Choi JC, Becker B, Edwards T, Hobar C, Pomponi S, Strand V. Qualitative patient interview study in patients with systemic lupus erythematosus to assess patient perception of fatigue and skin-related symptoms. Poster presented at the American College of Rheumatology (ACR) Convergence 2024; November 17, 2024. Washington, DC. [abstract] Arthritis Rheumatol. 2024; 76(suppl 9).

Gold BD, Goodwin B, Davis K, Sweeney C, Reynolds M, Jiang J, Fan T, Boules M, Chen S, Katzka DA. Health-related quality of life and perceived stigma in eosinophilic esophagitis: a real-world, US, web-based survey. Gastro Hep Adv. 2024;3(8):1087-97. doi: 10.1016/j.gastha.2024.07.015

Zografos LJ, Andrews E, Wolin DL, Calingaert B, Davenport EK, Michel A, Latocha M, Schmidt-Ott UM, Lovic N, Brunck LR, Johnson KT, Suzart-Woischnik K. Evaluation of physician knowledge of safety and safe use information for intravitreal aflibercept injection in Europe: a second survey of physicians following dissemination of updated risk-minimization materials. Pharmaceut Med. 2024 Jan;38(1):63-73. doi: 10.1007/s40290-023-00506-7

Gibble TH, Kosa K, Basnyat B, Martin S, Moses R, Dubinsky M. Patient perspectives on symptoms and impacts in Crohn's disease: results from qualitative research. Poster presented at the European Crohn's and Colitis Organisation (ECCO) 2024; February 21, 2024. Stockholm, Sweden. [abstract] J Crohns Colitis. 2024 Jan; 18(Suppl 1):i265.

Gibble TH, Kosa K, Basnyat B, Martin S, Moses R, Dubinsky M. Cognitive debriefing of a patient-reported outcome measure for abdominal pain and loose stool frequency in Crohn's disease. Poster presented at the European Crohn's and Colitis Organisation (ECCO) 2024; February 21, 2024. Stockholm, Sweden. [abstract] J Crohns Colitis. 2024 Jan; 18(Suppl 1):i572.

Norman K, French A, Lake A, Tchuisseu YP, Repka S, Vasudeva K, Dong C, Whitaker R, Bettger JP. Describing perspectives of telehealth and the impact on equity in access to health care from community and provider perspectives: a multimethod analysis. Telemed J E Health. 2024 Jan;30(1):242-59. doi: 10.1089/tmj.2023.0036

Martin Nguyen A, La Rosa C, Cornell AG, Sher MR, Bernstein JA, Birring SS, DeMuro Romano C, Mayorga M, Milien M, Ervin C. Content validity of the Leicester Cough Questionnaire in adults with refractory or unexplained chronic cough: a qualitative interview study. Ther Adv Respir Dis. 2024 Jan;18:175346662. doi: 10.1177/17534666241274261

Arends S, Choi JC, Becker B, Edwards T, Sreih A, Christodoulou A, Strand V. Qualitative study on patient-reported outcome measures in patients with Sjogren's disease. Poster presented at the American College of Rheumatology (ACR) Convergence 2024; November 17, 2024. Washington, DC. [abstract] Arthritis Rheumatol. 2024; 76(suppl 9).

Zavala DV, Dzikowski N, Gopalan S, Harrington KD, Pasquini G, Mogle J, Reid K, Sliwinski M, Graham-Engeland JE, Engeland CG, Bernard K, Veeramah K, Scott SB. Epigenetic age acceleration and chronological age: associations with cognitive performance in daily life. J Gerontol A Biol Sci Med Sci. 2024 Jan 1;79(1):glad242. doi: 10.1093/gerona/glad242

Cerino ES, Charles ST, Mogle J, Rush J, Piazza JR, Klepacz LM, Lachman ME, Almeida DM. Perceived control across the adult lifespan: longitudinal changes in global control and daily stressor control. Dev Psychol. 2024 Jan;60(1):45-58. doi: 10.1037/dev0001618

Kamudoni P, Amtmann D, Johns J, Cook KF, Salem R, Salek S, Raab J, Middleton R, Repovic P, Alschuler KN, Geldern GV, Wundes A, Barrett A, Olayinka-Amao O, Henke C. People with multiple sclerosis help design a tool to measure physical functioning and how it affects their daily lives: a plain language summary. Neurodegener Dis Manag. 2024;14(15):119-25. doi: 10.1080/17582024.2024.2357002

Davis S, Edwards T, Norcross L, Fehnel S, Beaudet A, Eckart M, Fastenau J. Use of the National Cancer Institute Patient-Reported Outcomes version of the common terminology criteria for adverse events to assess treatment tolerability in pulmonary arterial hypertension: qualitative patient research findings in current and former users of oral selexipag. J Patient Rep Outcomes. 2023 Dec 18;7(1):134. doi: 10.1186/s41687-023-00673-w.

Malec L, Carcao M, Mathias M, Kragh N, Dumont J, Willemze A, Bystricka L, Wilson A, DiBenedetti D. Experiences with efanesoctocog alfa: exit interviews with caregivers of previously treated patients with hemophilia a from the XTEND-Kids phase 3 clinical trial. Presented at the 65th ASH Annual Meeting & Exposition 2023; December 10, 2023. San Diego, CA.

Rastegar J, Hu A, Chung L, Stevens L, Dixon SW, Schwab P, Ellis JJ. HIV preexposure prophylaxis treatment patterns in a national health plan population. J Manag Care Spec Pharm. 2023 Dec;29(12):1267-74. doi: 10.18553/jmcp.2023.29.12.1267

Calhoun S, Kutikova L, Hollis KA, Helme K, Miller A, Schwarz TF. A novel approach to capturing real-world reasons behind use and satisfaction of NVX-CoV2373 booster use among German adults: direct-to-patient enrollment. Poster presented at the ISPOR Europe 2023; November 14, 2023. Copenhagen, Denmark. [abstract] Value Health. 2023 Dec; 26(12 Supplement):S490. doi: 10.1016/j.jval.2023.09.2649

Gibble TH, Sweeney C, Wolin D, McSorley D, Wang J, Koushik AK, Moses RE, Dubinsky MC. Real-world experience and perspectives on the treatment of crohn's disease: results from a healthcare provider survey. Poster presented at the 2023 Advances in Inflammatory Bowel Diseases (AIBD) Annual Meeting; December 14, 2023. Orlando, FL. [abstract] Am J Gastroenterol. 2023 Dec; 118(12S):S19.

Doma R, Suminski N, Gold A. Landscape analysis of Alzheimer's disease-specific caregiver outcome assessments. Poster presented at the ISPOR Europe 2023; November 12, 2023. Copenhagen, Denmark. [abstract] Value Health. 2023 Dec; 26(12 Supplement):S227. doi: 10.1016/j.jval.2023.09.1173

Gold A, Brouwer E, Hakkarainen KM, Brown D. A review of patient-reported outcomes and external control arms in regulatory submissions of novel oncology drugs. Poster presented at the ISPOR Europe 2023; November 12, 2023. Copenhagen, Denmark. [abstract] Value Health. 2023 Dec; 26(12 Supplement):S216-7. doi: 10.1016/j.jval.2023.09.1120

Nelson L, Ing SW, Rubin MR, Ma J, Martin S, Sen R, Ayodele O. Psychometric analysis of the patient-reported hypoparathyroidism symptom diary symptom subscale using data from two clinical trials. Patient Relat Outcome Meas. 2023 Nov 28;14:355-67. doi: 10.2147/PROM.S414794

Phillips T, Lugtenburg P, Kalsekar A, Mutebi A, Wang A, Blaedel J, Kosa K, Martin S, Sacchi M, Kilavuz N, Thieblemont C. Improvements in patient-reported outcomes in relapsed or refractory large b-cell lymphoma patients treated with epcoritamab. Clin Lymphoma Myeloma Leuk. 2023 Nov 27;24(3):e78-e87.e. doi: 10.1016/j.clml.2023.11.005

Kekalainen T, Luchetti M, Terracciano A, Gamaldo AA, Mogle J, Lovett HH, Brown J, Rantalainen T, Sliwinski MJ, Sutin AR. Physical activity and cognitive function: moment-to-moment and day-to-day associations. Int J Behav Nutr Phys Act. 2023 Nov 22;20(1):137. doi: 10.1186/s12966-023-01536-9

Doward L, Hawe E, Lloyd A, Wolowacz S. Estimating health-state utility for economic models in clinical trials and real-world studies. Presented at the ISPOR Europe 2023; November 12, 2023. Copenhagen, Denmark.

Clevenger C, Brubaker M, Patel M, Cummings J, Jackson WC, Stroud C, Pechin S, Bratlee-Whitaker E, Brown TM, Fehnel S, Grossberg G. One minute to recognition: the agitation in Alzheimer's screener for caregivers (AASC). Poster presented at the Gerontological Society of America's 2023 Annual Scientific Meeting; November 10, 2023. Tampa, FL.

Zaragoza-Urdaz RH, Burnette AF, Kelbel T, Riedl MA, Boyle K, Blair C, Fox D, Juethner S. Healthcare experiences prior to hereditary angioedema diagnosis in underrepresented racial/ethnic groups in the United States. Poster presented at the ACAAI 2023 Annual Scientific Meeting; November 10, 2023. Anaheim, CA.

Gold A, Suminksi N, Abbetz-Web L, Rudell K. Patient-focused evaluation of infant and toddler developmental clinical outcomes assessments (COAs) in clinical trials. Poster presented at the 30th Annual Conference of the International Society for Quality of Life Research (ISOQOL); October 18, 2023. [abstract] Qual Life Res. 2023 Nov 4; 32(Suppl 2):S110-1. doi: 10.1007/s11136-023-03530-x

Kamudoni P, Olayinka-Amao B, Barrett A, Park J. Appropriateness of Skindex 29 1 3 in cutaneous lupus erythematosus. Poster presented at the 30th Annual Conference of the International Society for Quality of Life Research; October 18, 2023. Alberta, Canada. [abstract] Qual Life Res. 2023 Nov 4; 32(Supple 2):S203. doi: 10.1007/s11136-023-03530-x

Kamudoni P, Olayinka-Amao O, Barrett A, Park J. Identifying meaningful aspects of worst itch in cutaneous lupus erythematosus for assessment using an itch numeric rating scale. Poster presented at the 30th Annual Conference of the International Society for Quality of Life Research; October 18, 2023. Alberta, Canada. [abstract] Qual Life Res. 2023 Nov 4; 32(Suppl2):S204. doi: 10.1007/s11136-023-03530-x

Freed SS, Jones KA, Whitaker RG, Norman K, Carvalho M, Giri A, Lake A, Tchuisseu YP, Repka S, Vasudeva K, Bey N, Bettger JP. Evaluating telehealth uptake among North Carolina Medicaid beneficiaries with musculoskeletal conditions: insights from the COVID-19 pandemic. Med Care. 2023 Nov 1;61(11):750-9. doi: 10.1097/MLR.0000000000001915

Miller SE, Mogle JA, Linden-Carmichael AN, Almeida DM. Within‐person associations between alcohol use and memory lapses among middle‐aged and older adults. Drug Alcohol Rev. 2023 Nov;42(7):1754-63. doi: 10.1111/dar.13721

Harrington EE, Graham-Engeland JE, Sliwinski MJ, Van Bogart K, Mogle JA, Katz MJ, Lipton RB, Engeland CG. Older adults' self-reported prospective memory lapses in everyday life: connections to inflammation and gender. J Psychosom Res. 2023 Nov;174:111489. doi: 10.1016/j.jpsychores.2023.111489.

Williams V, Romano (DeMuro) C, Clark M, Korver D, Williams N, Goss D, Naujoks C, Marvel J. Psychometric evaluation of an electronic Asthma Symptom Diary for young children. J Patient Rep Outcomes. 2023 Oct 30;7(1):105. doi: 10.1186/s41687-023-00647-y

Shamarina D, Sluga-O'Callaghan M, Kassianos G, Marijam A, Dave V, Davenport E, Andani A, Curran D, Dewda P, Steffen R. Knowledge, attitudes, and practices of European healthcare professionals towards hepatitis A and hepatitis B vaccination in at-risk adults. Vaccines (Basel). 2023 Oct 26;11(1645):1-19. doi: 10.3390/vaccines11111645

Danese D, Goss D, Romano (DeMuro) C, Gupta C. Qualitative assessment of the patient experience of primary hyperoxaluria type 1: an observational study. BMC Nephrol. 2023 Oct 26;24(1):319. doi: 10.1186/s12882-023-03365-1

Korver D. A gentle introduction to creating SAS graphs Part 2. Presented at the Southeast SAS User Group Conference; October 24, 2023. Charlotte, NC.

Romano (DeMuro) C, Bratlee-Whitaker E, Herring WL, Callahan L, Raimundo K, Taylor J, Taylor G, Kremer I, Lappin D, Frangiosa T, Gnanasakthy K, Goss D, Paulsen R, Hartry A, DiBenedetti D. Measuring what matters most to people living with Alzheimer's disease and care partners: what matters most qualitative research. Poster presented at the 16th Clinical Trials on Alzheimer's Disease (CTAD); October 24, 2023. Boston, MA.

DiBenedetti D, Doward L. Innovations in in-trial interviews: novel approaches to capturing the patient experience in quality of life research. Presented at the ISOQOL 30th Annual Conference; October 21, 2023. Calgary, Canada.

Rockwood N, Qin S, Yarr S. Estimating change score/responsiveness correlations among ordinal measures. Presented at the ISOQOL 30th Annual Conference; October 20, 2023. Calgary, Canada.

Rockwood N. An agreement-based ICC for estimating interrater reliability in a finite population of raters. Poster presented at the ISOQOL 30th Annual Conference; October 19, 2023. Calgary, Canada.

DiBenedetti D, Doward L. Design considerations for successful in-trial interviews: the who, what, when, where, and how. Presented at the ISOQOL 30th Annual Conference; October 18, 2023. Calgary, Canada.

Mogle J, Turner JR, Bhargava S, Stawski RS, Almeida DM, Hill NL. Individual differences in frequency and impact of daily memory lapses: results from a national lifespan sample. BMC geriatr. 2023 Oct 17;23(1):670. doi: 10.1186/s12877-023-04363-6

Sinclair G, Sension M, Dretler A, Schneider S, Schubert C, Merrill D, Richardson D, Sherif B, Zografos L, Garris C. Clinical outcomes at month 6 after initiation of cabotegravir and rilpivirine long-acting (CAB+RPV LA) in an observational real-world study (BEYOND). Poster presented at the IDWeek 2023; October 13, 2023. Boston, MA.