Publications

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Displaying 1 through 50 of 60 publications.

Loria-Rebolledo LE, van Woerden HC, Bryers H, Erdem S, Watson V. Preferences of recent mums in remote and rural areas for type of intrapartum care: a discrete choice experiment. Patient. 2024 Nov;17(6):663-72. doi: 10.1007/s40271-024-00704-8.

Vass C, Boeri M, Shields G, Seo J. Making use of technology to improve stated preference studies. Patient. 2024 Sep;17(5):483-91. doi: 10.1007/s40271-024-00693-8

Gnanasakthy A, Romano DeMuro C. Editorial - The limitations of EQ‑5D as a clinical outcome assessment tool. Patient. 2024 May;17(3):215-7. doi: 10.1007/s40271-024-00683-w

Muhlbacher AC, de Bekker-Grob EW, Rivero-Arias O, Levitan B, Vass C. How to present a decision object in health preference research: attributes and levels, the decision model, and the descriptive framework. Patient. 2024 Feb 10. doi: 10.1007/s40271-024-00673-y

Cella D, Wen PY, Ervin C, Vallow S, Gilloteau I, DeMuro C, Mordin M, Agostinho AC, Dine J. Understanding the patient experience and treatment benefits in patients with non–small-cell lung cancer with brain metastasis. Cancer Med. 2023 Jun 12;12(12):13637-48. doi: 10.1002/cam4.5975

Watson V, Bryers H, Krucien N, Erdem S, Burnside M, van Woerden HC. The perception of women in rural and remote Scotland about intrapartum care: a qualitative study. Patient. 2023 Mar;16(2):117-25. doi: 10.1007/s40271-022-00608-5

Taylor MH, Leboulleux S, Panaseykin Y, Konda B, de La Fouchardiere C, Hughes BGM, Gianoukakis AG, Park YJ, Romanov I, Krzyzanowska MK, Garbinsky D, Sherif B, Pan JJ, Binder TA, Sauter N, Xie R, Brose MS. Health-related quality-of-life analyses from a multicenter, randomized, double-blind phase 2 study of patients with differentiated thyroid cancer treated with lenvatinib 18 or 24 mg/day. Cancer Med. 2023 Feb;12(4):4332-42. doi: 10.1002/cam4.5308

Gnanasakthy A, Qin S, Norcross L. Editorial - FDA guidance on selecting, developing, or modifying fit-for-purpose clinical outcome assessments: old wine in a new bottle? Patient. 2023 Jan. doi: 10.1007/s40271-022-00607-6

Mansfield C, Bullok K, Fuhs JV, Tockhorn-Heidenreich A, Andrews JS, DiBenedetti D, Matthews BR, Darling JC, Sutphin J, Hauber B. The patient voice: exploring treatment preferences in participants with mild cognitive concerns to inform regulatory decision making. Patient. 2022 Sep;15(5):551-64. doi: 10.1007/s40271-022-00576-w

Vass CM, Barton A, Payne K. Towards personalising the use of biologics in rheumatoid arthritis: a discrete choice experiment. Patient. 2022 Jan;15(1):109-19. doi: 10.1007/s40271-021-00533-z

Ueda K, Takura T, Fujikoshi S, Meyers J, Nagar SP, Enomoto H. Long-term pain management and health care resource use among an employed population in Japan with knee osteoarthritis combined with low back pain. Pain Med. 2021 Dec 11;22(12):3041-50. doi: 10.1093/pm/pnaa424

Dzimitrowicz H, Esterberg E, Miles L, Zanotti G, Borham A, Harrison MR. Referral and adjuvant treatment patterns after nephrectomy in high-risk locoregional renal cell carcinoma. Cancer Med. 2021 Dec;10(24):8891-8. doi: 10.1002/cam4.4407

Gnanasakthy A. Editorial - FDA guidance on assessment of patient‑reported outcomes in cancer trials: a breath of fresh air or a storm in a teacup? Patient. 2021 Nov;14(6):695-7. doi: 10.1007/s40271-021-00542-y

Shields GE, Brown L, Wells A, Capobianco L, Vass C. Utilising patient and public involvement in stated preference research in health: learning from the existing literature and a case study. Patient. 2021 Jul;14(4):399-412. doi: 10.1007/s40271-020-00439-2

Vass CM, Boeri M, Poulos C, Turner AJ. Matching and weighting in health preference research. Presented at the 2021 Virtual 12th Meeting of the International Academy of Health Preference Research; June 2021. [abstract] Patient. 2021 Jun 18; p.1-6. doi: 10.1007/s40271-021-00532-0

Goyal RK, Nagar SP, Kabadi SM, Le H, Davis KL, Kaye JA. Overall survival, adverse events, and economic burden in patients with chronic lymphocytic leukemia receiving systemic therapy: real-world evidence from the medicare population. Cancer Med. 2021 Apr;10(8):2690-702. doi: 10.1002/cam4.3855

Pearce A, Harrison M, Watson V, Street DJ, Howard K, Bansback N, Bryan S. Respondent understanding in discrete choice experiments: a scoping review. Patient. 2021 Jan;14(1):17-53. doi: 10.1007/s40271-020-00467-y

Vass CM, Boeri M. Mobilising the next generation of stated-preference studies: the association of access device with choice behaviour and data quality. Patient. 2021 Jan;14(1):55-63. doi: 10.1007/s40271-020-00484-x

Doward LC, Balp M-M, Twiss J, Slota C, Cryer D, Brass CA, Anstee QM, Sanyal AJ. Development of a patient-reported outcome measure for non-alcoholic steatohepatitis (NASH-CHECK): results of a qualitative study. Patient. 2020 Dec 18. doi: 10.1007/s40271-020-00485-w

Hollin IL, Craig BM, Coast J, Beusterien K, Vass CM, DiSantostefano R, Peay H. Reporting formative qualitative research to support the development of quantitative preference study protocols and corresponding survey instruments: guidelines for authors and reviewers. Patient. 2020 Feb;13:121-36. doi: 10.1007/s40271-019-00401-x

Lewis S, Romano C, De Bruecker G, Murrough JW, Shelton R, Singh JB, Jamieson C. Analysis of clinical trial exit interview data in patients with treatment-resistant depression. Patient. 2019 Oct;12(5):527-37. doi: 10.1007/s40271-019-00369-8

Barrett A, Hahn-Pedersen J, Kragh N, Evans E, Gnanasakthy A. Patient-reported outcome measures in atopic dermatitis and chronic hand eczema in adults. Patient. 2019 Oct;12(5):445-9. doi: 10.1007/s40271-019-00373-y

Vass CM, Davison N, Vander Stichele G, Payne K. A picture is worth a thousand words: the role of survey training materials in stated-preference studies. Patient. 2019 Sep 30. doi: 10.1007/s40271-019-00391-w

Rigby D, Vass C, Payne K. Opening the 'Black Box': an overview of methods to investigate the decision-making process in choice-based surveys. Patient. 2019 Sep 5. doi: 10.1007/s40271-019-00385-8

Martin KR, Druce KL, Murdoch SE, D'Ambruoso L, Macfarlane GJ. Differences in long-term physical activity trajectories among individuals with chronic widespread pain: a secondary analysis of a randomized controlled trial. Eur J Pain. 2019 Sep;23(8):1437-47. doi: 10.1002/ejp.1410

Crawford R, Sully K, Conroy R, Johnson C, Doward L, Bell T, Welch V, Peloquin F, Gater A. Patient-centered insights on treatment decision making and living with acute myeloid leukemia and other hematologic cancers. Patient. 2019 Aug 28. doi: 10.1007/s40271-019-00384-9

Kabadi SM, Goyal RK, Nagar SP, Kaye JA, Davis KL. Treatment patterns, adverse events, and economic burden in a privately insured population of patients with chronic lymphocytic leukemia in the United States. Cancer Med. 2019 Jul;8(8):3803-10. doi: 10.1002/cam4.2268

Ritchey ME, Harding A, Hunter S, Peterson C, Sager PT, Kowey PR, Nguyen L, Thomas S, Cainzos-Achirica M, Rothman KJ, Andrews EB, Anthony MS. Cardiovascular safety during and after use of phentermine and topiramate. J Clin Endocrinol Metab. 2019 Feb 1;104(2):513-22. doi: 10.1210/jc.2018-01010

Vass CM, Rigby D, Paynee K. “I was trying to do the maths”: exploring the impact of risk communication in discrete choice experiments. Patient. 2019 Feb;12(1):113-23. doi: 10.1007/s40271-018-0326-4

Mansfield C, Ekwueme DU, Tangka FKL, Brown DS, Smith JL, Guy, Jr GP, Li C, Hauber B. Colorectal cancer screening: preferences, past behavior, and future intentions. Patient. 2018 Nov 5;11(6):599-611. doi: 10.1007/s40271-018-0308-6

Wright SJ, Vass CM, Sim G, Burton M, Fiebig DG, Payne K. Accounting for scale heterogeneity in healthcare-related discrete choice experiments when comparing stated preferences: a systematic review. Patient. 2018 Oct;11(5):475-88. doi: 10.1007/s40271-018-0304-x

Vass CM, Wright S, Burton M, Payne K. Scale heterogeneity in healthcare discrete choice experiments: a primer. Patient. 2018 Apr;11(2):167-73. doi: 10.1007/s40271-017-0282-4

Ikenwilo D, Heidenreich S, Ryan M, Mankowski C, Nazir J, Watson V. The best of both worlds: an example mixed methods approach to understand men's preferences for the treatment of lower urinary tract symptoms. Patient. 2018 Feb;11(1):55-67. doi: 10.1007/s40271-017-0263-7

Winnette R, Hess LM, Nicol SJ, Tai DF, Copley-Merriman C. The patient experience with soft tissue sarcoma: a systematic review of the literature. Patient. 2017 Apr;10(2):153-62. doi: 10.1007/s40271-016-0200-1

Copley-Merriman C, Zelt S, Clark M, Gnanasakthy A. Impact of measuring patient-reported outcomes in dermatology drug development. Patient. 2017 Apr;10(2):203-13. doi: 10.1007/s40271-016-0196-6

Ayorinde AA, Bhattacharya S, Druce KL, Jones GT, Macfarlane GJ. Chronic pelvic pain in women of reproductive and post-reproductive age: a population-based study. Eur J Pain. 2017 Mar;21(3):445-55. doi: 10.1002/ejp.938.

Gray E, Eden M, Vass C, McAllister M, Louviere J, Payne K. Valuing preferences for the process and outcomes of clinical genetics services: a pilot study. Patient. 2016 Apr;9(2):135-47. doi: 10.1007/s40271-015-0133-0

Poulos C, Kinter E, Yang J-C, Bridges JFP, Posner JD, Reder AT. Patient preferences for injectable treatments for multiple sclerosis in the United States: a discrete-choice experiment. Patient. 2016 Apr;9(2):171-80. doi: 10.1007/s40271-015-0136-x

Lupo PJ, Danysh HE, Plon SE, Curtin K, Malkin D, Hettmer S, Hawkins DS, Skapek SX, Spector LG, Papworth K, Melin B, Erhardt EB, Grufferman S, Schiffman JD. Family history of cancer and childhood rhabdomyosarcoma: a report from the Children's Oncology Group and the Utah Population Database. Cancer Med. 2015 May;4(5):781-90. doi: 10.1002/cam4.448

Harrison M, Rigby D, Vass C, Flynn T, Louviere J, Payne K. Risk as an attribute in discrete choice experiments: a systematic review of the literature. Patient. 2014 Jun;7(2):151-70. doi: 10.1007/s40271-014-0048-1

Layton JB, Li D, Meier CR, Sharpless JL, Sturmer T, Jick SS, Brookhart MA. Testosterone lab testing and initiation in the United Kingdom and the United States, 2000 to 2011. J Clin Endocrinol Metab. 2014 Mar;99(3):835-42. doi: 10.1210/jc.2013-3570

Nelson LM, Forsythe A, McLeod L, Pulgar S, Maldonado M, Coles T, Zhang Y, Webb SM, Badia X. Psychometric evaluation of the Cushing's Quality-of-Life Questionnaire. Patient. 2013 Apr 1;Advance Online.

Deal LS, Williams VSL, Fehnel SE. Development of an electronic daily uterine fibroid symptom diary. Patient. 2011 Jan 1;4(1):31-44.

Baldwin M, Spong A, Doward LC, Gnanasakthy A. Patient-reported outcomes, patient-reported information: from randomized controlled trials to the social web and beyond. Patient. 2011 Jan;4(1):11-7. doi: 10.2165

Nathan RA, Dalal AA, Stanford RH, Meltzer EO, Schatz M, Derebery J, Mintz M, Thompson MA, DiBenedetti DB. Qualitative development of the rhinitis control assessment test (RCAT), an instrument for evaluating rhinitis symptom control. Patient. 2010 Jun 1;3(2):91-9.

Habib ZA, Havstad SL, Wells K, Divine G, Pladevall-Vila M, Wiliams LK. Thiazolidinedione use and the longitudinal risk of fractures in patients with type 2 diabetes mellitus. J Clin Endocrinol Metab. 2010 Feb;95(2):592-600.

Fehnel S, Zografos L, Curtice T, Shah H, McLeod L. The burden of restless legs syndrome: an assessment of work productivity, sleep, psychological distress, and health status among diagnosed and undiagnosed individuals in an internet-based panel. Patient. 2008 Jul 1;1(3):201-10.

Johnson FR, Mansfield CA. Survey-design and analytical strategies for better healthcare stated-choice studies. Patient. 2008;1(4):299-307.

Arnold L, Crofford L, Martin SA, Young J, Sharma U. The effect of anxiety and depression on improvements in pain in a randomized, controlled trial of pregabalin for treatment of fibromyalgia. Pain Med. 2007 Nov;8(8):633-8.

Barrett AM, Lucero MA, Le T, Robinson RL, Dworkin RH, Chappell AS. Epidemiology, public health burden, and treatment of diabetic peripheral neuropathic pain: a review. Pain Med. 2007 Sep 1;8(Suppl 2):S50-62.