Publications

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Displaying 1 through 50 of 203 publications.

Tamhankar MA, Raza S, Brutsaert E, Urdaniz E, Vainilovich Y, Heyes A, Gildea L, Sales-Sanz M. The burden of illness in thyroid eye disease: current state of the evidence. Front Ophthalmol. 2025 Apr 16;5. doi: 10.3389/fopht.2025.1565762

Brufsky AM, Sandin R, Stergiopoulos S, Chen C, Karanth S, Li B, Esterberg E, Makari D, Candrilli SD, Goyal RK, Rugo HS. Overall survival with palbociclib and aromatase inhibitor versus aromatase inhibitor alone in older patients with HR+/HER2− metastatic breast cancer. Cancer Med. 2025 Apr;14(7):e70719. doi: 10.1002/cam4.70719

Zubizarreta-Arruti U, Bosch R, Soler Artigas M, Cabana-Dominguez J, Llonga N, Carabi-Gassol P, Macias-Chimborazo V, Vilar-Ribo L, Ramos-Quiroga JA, Pagerols M, Prat R, Rivas C, Pagespetit E, Puigbo J, Espanol-Martin G, Raimbault B, Valentin A, Sunyer J, Foraster M, Gascon M, Casas M, Ribases M, Alemany S. Associations between air pollution and surrounding greenness with internalizing and externalizing behaviors among schoolchildren. Child Adolesc Ment Health. 2025 Mar 21. doi: 10.1111/camh.12772

Khanji C, Nuabor W, Gould T, Kim HK, Barrows S, Herbel B, Njue A. Systematic literature review of outcomes associated with adherence to haemophilia drug therapy. Haemophilia. 2025 Mar;31(2):187-206. doi: 10.1111/hae.15153

Frederiksen KS, Hahn-Pedersen J, Crawford R, Morrison R, Jeppesen R, Doward L, Weidner W. Traversing shifting sands-the challenges of caring for someone with Alzheimer's disease and the impact on care partners: social media content analysis. J Med Internet Res. 2025 Feb 18;27:e55468. doi: 10.2196/55468

Gold BD, Goodwin B, Davis K, Sweeney C, Ziemiecki R, Jiang J, Fan T, Boules M, Chen ST, Katzka DA. Satisfaction with and adherence to off-label corticosteroids in adolescents and adults with eosinophilic esophagitis: results of a web-based survey in the United States. J Clin Gastroenterol. 2025 Feb;59(2):138-46. doi: 10.1097/MCG.0000000000002006

Barrett A, Olayinka-Amao O, Ziemssen T, Bharadia T, Henke C, Kamudoni P. A plain language summary of a study exploring the experiences of people with relapsing-remitting multiple sclerosis: what symptoms and impacts of the disease matter most and how can they be evaluated better? Neurodegener Dis Manag. 2025 Feb;15(1):9-16. doi: 10.1080/17582024.2024.2441068

Halsby K, Dobler G, Easton A, Karelis G, Krbkova L, Kyncl J, Sellner J, Strle F, Veje M, Zajkowska J, Zavadska D, Angulo FJ, Pilz A, Erber W, Gabriel M, Russo J, Price M, Madhava H, Meyding-Lamade UK. Evaluating the need for standardised disease manifestation categories in patients infected with the tick-borne encephalitis virus: a Delphi panel. Ticks Tick Borne Dis. 2025 Jan;16(1):102431. doi: 10.1016/j.ttbdis.2024.102431

Pistillo A, Warkentin S, Abellan A, de Bont J, Ranger T, Perez-Crespo L, Cirach M, Perramon-Malavez A, Khalid S, Nieuwenhuijsen M, Vrijheid M, Duarte-Salles T. Residential relocation and changes in patterns of environmental exposures by health determinants among children and adolescents in Catalonia, Spain. Environ Res. 2024 Dec 15;263(Pt 2):120152. doi: 10.1016/j.envres.2024.120152

Ismail Z, Meehan SR, Farovik A, Miguelez M, Kapadia S, Regnier SA, Zhang Z, Brown TM, Milien M, McIntyre RS. Assessment of patient life engagement in schizophrenia using items from the Positive and Negative Syndrome Scale. Schizophr Res. 2024 Dec;274:337-44. doi: 10.1016/j.schres.2024.10.008

van der Veer SN, Griffiths-Jones D, Parkes M, Druce KL, Amlani-Hatcher P, Armitage CJ, Bansback N, Bower P, Dowding D, Ellis B, Firth J, Gavan S, Mackey E, Sanders C, Sharp CA, Staniland K, Dixon WG, REMORA team. Remote monitoring of rheumatoid arthritis (REMORA): study protocol for a stepped wedge cluster randomized trial and process evaluation of an integrated symptom tracking intervention. Trials. 2024 Oct 15;25(1):683. doi: 10.1186/s13063-024-08497-9

Pandya AG, Amoloja T, Bibeau K, DiBenedetti D, Kosa K, Butler K, Kornacki D, Ezzedine K. Assessing participants' experiences with vitiligo from patient interviews. Dermatol Ther. 2024 Sep;14(9):2467-78. doi: 10.1007/s13555-024-01241-w

McKenna S, McCord N, Diven J, Fitzpatrick M, Easlea H, Gibbs A, Mitchell ARJ. Evaluating the impacts of digital ECG denoising on the interpretive capabilities of healthcare professionals. Eur Heart J Digit Health. 2024 Aug 12;5(5):601-10. doi: 10.1093/ehjdh/ztae063

McCann E, Peterson KA, Whalley D, Qin S, Tilton ST, Kamat S, Sun X, Dellon ES. Psychometric evaluation of the Dysphagia Symptom Questionnaire for adults and adolescents with eosinophilic esophagitis. J Allergy Clin Immunol Glob. 2024 Jul 16;3(4):100302. doi: 10.1016/j.jacig.2024.100302

van der Pol M, Watson V, Boyers D. Stability of willingness to pay: does time and treatment allocation in a randomized controlled trial influence willingness to pay? Med Decis Making. 2024 Jul;44(5):470-80. doi: 10.1177/0272989X241249654.

Morga A, Zimmermann L, Valluri U, Siddiqui E, McLeod L, Bender RH. Validation and application of thresholds to define meaningful change in vasomotor symptoms frequency: analysis of pooled SKYLIGHT 1 and 2 data. Adv Ther. 2024 Jul;41(7):2845-58. doi: 10.1007/s12325-024-02849-2

Herrera-Restrepo O, Bunniran S, Mond T, Davenport E, Wang J, Sweeney C, Marshall GS. United States physicians' knowledge, attitudes, and practices regarding meningococcal vaccination for healthy adolescents and young adults. J Adolesc Health. 2024 Jun;74(6):1131-8. doi: 10.1016/j.jadohealth.2023.11.394

Herring WL, Gallagher ME, Shah N, Morse KC, Mladsi D, Dong OM, Chawla A, Leiding JW, Zhang L, Paramore C, Andemariam B. Cost-effectiveness of lovotibeglogene autotemcel (lovo-cel) gene therapy for patients with sickle cell disease and recurrent vaso-occlusive events in the United States. Pharmacoeconomics. 2024 Jun;42(6):693-714. doi: 10.1007/s40273-024-01385-9

Keens T, Hoffman V, Topuria I, Elder K, Cerf S, Mulder K, Roberts J, Lysinger J, Del Carmen Reyes M, Berdella M, Cairns AM, Jain M, Ganapathy V, Lou Y, Morcos B, Wu C, Sass L, VX19-CFD-003 Study Group. Real-world effectiveness of elexacaftor/tezacaftor/ivacaftor on the burden of illness in adolescents and adults with cystic fibrosis. Heliyon. 2024 Mar 26;10(7):e28508. doi: 10.1016/j.heliyon.2024.e28508

Bali V, Schelfhout J, Sher MR, Tripathi Peters A, Patel GB, Mayorga M, Goss D, Romano (DeMuro) C. Patient-reported experiences with refractory or unexplained chronic cough: a qualitative analysis. Ther Adv Respir Dis. 2024 Mar 19;18:175346662. doi: 10.1177/17534666241236025

Mouchtouri VA, Simou E, Soteriades S, Rousou X, Kontouli KM, Kafetsouli D, Kourentis L, Anagnostopoulos L, Hadjichristodoulou C. Systematic literature review and meta-analysis on preventing and controlling norovirus outbreaks on cruise ships, 1990 to 2020: calling for behaviour change strategies of travellers. Euro Surveill. 2024 Mar 7;29(10). doi: 10.2807/1560-7917.ES.2024.29.10.2300345

Mladsi D, Zhou X, Mader G, Sanon M, Wang J, Barnett C, Willey C, Seliger S. Mortality risk in patients with autosomal dominant polycystic kidney disease. BMC Nephrol. 2024 Feb 16;25(1):56. doi: 10.1186/s12882-024-03484-3

Brown TM, Vera-Llonch M, Kanu C, Sikora Kessler A, Yarlas A, Fehnel SE. Cross-sectional quantitative evaluation of a novel patient-reported outcome measure in familial chylomicronemia syndrome. Patient Relat Outcome Meas. 2024 Feb 15;15:45-59. doi: 10.2147/PROM.S441583

Muhlbacher AC, de Bekker-Grob EW, Rivero-Arias O, Levitan B, Vass C. How to present a decision object in health preference research: attributes and levels, the decision model, and the descriptive framework. Patient. 2024 Feb 10. doi: 10.1007/s40271-024-00673-y

Neumann ML, Allen JY, Ladner A, Kakani S, Weaver MS, Mercer DF. Exploring the impact of pediatric short bowel syndrome on parent well-being using a disease-specific pilot survey. Nutr Clin Pract. 2024 Feb;39(1):154-67. doi: 10.1002/ncp.11008

Armstrong AW, Jayade S, Rege S, Joshi N, Patel V, Kalirai S, Wolin D, Boyle K, Patel D, Seigel L. Evaluating treatment choice in patients with moderate to severe psoriasis in the United States: results from a US patient survey. Dermatol Ther. 2024 Feb;14(2):421-39. doi: 10.1007/s13555-023-01089-6

Callahan LF, Samsell B, DiBenedetti D, Frangiosa T, Slota C, Biggar V, Paulsen R, Lappin D, Herring WL, Romano (DeMuro) C. Evaluating elements of the care partner experience in individuals who care for people with Alzheimer's disease across the severity spectrum. Neurol Ther. 2024 Feb;13(1):53-67. doi: 10.1007/s40120-023-00558-6

Gold BD, Goodwin B, Davis K, Sweeney C, Reynolds M, Jiang J, Fan T, Boules M, Chen S, Katzka DA. Health-related quality of life and perceived stigma in eosinophilic esophagitis: a real-world, US, web-based survey. Gastro Hep Adv. 2024;3(8):1087-97. doi: 10.1016/j.gastha.2024.07.015

Perez-Crespo L, Lopez-Vicente M, Valentin A, Burgaleta M, Foraster M, Tiemeier H, Guxens M. Association between residential exposure to road traffic noise and cognitive and motor function outcomes in children and preadolescents. Environ Int. 2024 Jan;183:108414. doi: 10.1016/j.envint.2023.108414

Martin Nguyen A, La Rosa C, Cornell AG, Sher MR, Bernstein JA, Birring SS, DeMuro Romano C, Mayorga M, Milien M, Ervin C. Content validity of the Leicester Cough Questionnaire in adults with refractory or unexplained chronic cough: a qualitative interview study. Ther Adv Respir Dis. 2024 Jan;18:175346662. doi: 10.1177/17534666241274261

Wang Z, Whipp AM, Heinonen-Guzejev M, Foraster M, Julvez J, Kaprio J. The association between urban land use and depressive symptoms in young adulthood: a FinnTwin12 cohort study. J Expo Sci Environ Epidemiol. 2023 Dec 11. doi: 10.1038/s41370-023-00619-w

Myers K, Silverberg JI, Parasuraman S, Pierce A, Eichenfield LF, Poulos C. Treatment preferences among patients with mild-to-moderate atopic dermatitis. J Dermatolog Trea. 2023 Dec;34(1):2215356. doi: 10.1080/09546634.2023.2215356.

Weaver BW, Mumma JM, Parmar S, MacKay RE, Morgan JS, Ghassemian G, Gannon PR, Lee L. Understanding how infection prevention influences nurses' task sequencing using a mixed-methods, simulation-based approach. Hum Factors Health. 2023 Dec;4:100046. doi: 10.1016/j.hfh.2023.100046

Wesselink AK, Hystad P, Kirwa K, Kaufman JD, Willis MD, Wang TR, Szpiro AA, Levy JI, Savitz DA, Rothman KJ, Hatch EE, Wise LA. Air pollution and fecundability in a North American preconception cohort study. Environ Int. 2023 Nov;181:108249. doi: 10.1016/j.envint.2023.108249

Danese D, Goss D, Romano (DeMuro) C, Gupta C. Qualitative assessment of the patient experience of primary hyperoxaluria type 1: an observational study. BMC Nephrol. 2023 Oct 26;24(1):319. doi: 10.1186/s12882-023-03365-1

Mogle J, Turner JR, Bhargava S, Stawski RS, Almeida DM, Hill NL. Individual differences in frequency and impact of daily memory lapses: results from a national lifespan sample. BMC geriatr. 2023 Oct 17;23(1):670. doi: 10.1186/s12877-023-04363-6

Dubov A, Krakower DS, Rockwood N, Montgomery S, Shoptaw S. Provider implicit bias in prescribing HIV pre-exposure prophylaxis (PrEP) to people who inject drugs. J Gen Intern Med. 2023 Oct;38(13):2928-35. doi: 10.1007/s11606-023-08040-7

Warkentin S, de Bont J, Abellan A, Pistillo A, Saucy A, Cirach M, Nieuwenhuijsen M, Khalid S, Basagana X, Duarte-Salles T, Vrijheid M. Changes in air pollution exposure after residential relocation and body mass index in children and adolescents: a natural experiment study. Environ Pollut. 2023 Oct 1;334:122217. doi: 10.1016/j.envpol.2023.122217

Snider MDH, Boyd MR, Walker MR, Powell BJ, Lewis CC. Using audit and feedback to guide tailored implementations of measurement-based care in community mental health: a multiple case study. Implement Sci Commun. 2023 Aug 14;4(1):94. doi: 10.1186/s43058-023-00474-8

Mweemba O, Maman S, Freeborn K, Hazwela C, Kamat A, Kumwenda A, Lusaka M, Matenga TFL, Namukanga NE, Rosenberg NR, Chi BH, Mutale W. Perspectives and experiences of Zambian pregnant and postpartum women receiving two intervention models to increase uptake of male partner HIV testing. Glob Public Health. 2023 Aug 8;18(1). doi: 10.1080/17441692.2023.2242463

de Sousa Maciel I, Piironen AK, Afonin AM, Ivanova M, Alatalo A, Jadhav KK, Julvez J, Foraster M, van Kamp I, Kanninen KM. Plasma proteomics discovery of mental health risk biomarkers in adolescents. Nat Mental Health. 2023 Aug;1:596-605. doi: 10.1038/s44220-023-00103-2

Layton JB, Ritchey ME, Huang Z, Chavan S, Ay H, Souayah N, Anderson-Smits C. Intravenous immunoglobulin initiation in patients with chronic inflammatory demyelinating polyradiculoneuropathy: a US claims-based cohort study. Neurol Ther. 2023 Aug;12(4):1171-86. doi: 10.1007/s40120-023-00479-4

Erbe AW, Kendzia D, Busink E, Carroll S, Aas E. Value of an integrated home dialysis model in the United Kingdom: a cost-effectiveness analysis. Value Health. 2023 Jul;26(7):984-94. doi: 10.1016/j.jval.2023.02.009

Schulz R, Watson V, Wersing M. Teleworking and housing demand. Reg Sci Urban Econ. 2023 Jul;101:103915. doi: 10.1016/j.regsciurbeco.2023.103915

Gracia Baena JM, Marsal Mora JR, Llorca Cardenosa S, Calaf Vall I, Zielonka M, Godoy P. Impact of severe aortic stenosis on quality of life. PLoS One. 2023 Jun 21;18(6):e0287508. doi: 10.1371/journal.pone.0287508

Turner JR, Hill NL, Brautigam L, Bhargava S, Mogle J. How does exposure to dementia relate to subjective cognition? A systematic review. Innov Aging. 2023 Jun 19. doi: 10.1093/geroni/igad056

Cella D, Wen PY, Ervin C, Vallow S, Gilloteau I, DeMuro C, Mordin M, Agostinho AC, Dine J. Understanding the patient experience and treatment benefits in patients with non–small-cell lung cancer with brain metastasis. Cancer Med. 2023 Jun 12;12(12):13637-48. doi: 10.1002/cam4.5975

Hill NL, Bratlee-Whitaker E, Jang H, Bhargava S, Sillner AY, Do J, Mogle J. Patient-provider communication about cognition and the role of memory concerns: a descriptive study. BMC geriatr. 2023 May 31;23(1):342. doi: 10.1186/s12877-023-04053-3

Crawford R, Sikirica S, Morrison R, Cappelleri JC, Russell-Smith A, Shah R, Chadwick H, Doward L. The patient experience of acute lymphoblastic leukemia and its treatment: social media review. JMIR Cancer. 2023 May 1;9:e39852.. doi: 10.2196/39852

Handels RLH, Green C, Gustavsson A, Herring WL, Winblad B, Wimo A, Skoldunger A, Karlsson A, Anderson R, Belger M, Bruck C, Espinosa R, Hlavka J, Jutlowitz E, Lin P-J, Lopez Mendez M, Mar J, Shewmaker P, Spackman E, Tafozzoli A, Tysinger B, Jonsson L. Cost-effectiveness models for Alzheimer's disease and related dementias: IPECAD modeling workshop cross-comparison challenge. Alzheimers Dement. 2023 May;19(5):1800-20. doi: 10.1002/alz.12811