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Publications
Romano (DeMuro) C , Bratlee-Whhitaker E , Hartry A, Mearns E, Taylor J, Taylor G, Callahan L, Monks D, Kremer I, Lappin D, Frangiosa T, Sangodkar S, Herring WL , Gnanasakthy K , Goss D , McLeod L , Edwards T , Poulos C , DiBenedetti D , Paulsen R. Measuring what matters most to people living with Alzheimer's disease and care partners: what matters most quantitative research development . Poster presented at the Alzheimer's Association International Conference (AAIC) 2024; July 31, 2024. Philadelphia, PA.
Romano (DeMuro) C , Bratlee-Whitaker E , Herring WL , Callahan L, Raimundo K, Taylor J, Taylor G, Kremer I, Lappin D, Frangiosa T, Gnanasakthy K , Goss D , Paulsen R, Hartry A, DiBenedetti D . Measuring what matters most to people living with Alzheimer's disease and care partners: what matters most qualitative research . Poster presented at the 16th Clinical Trials on Alzheimer's Disease (CTAD); October 24, 2023. Boston, MA.
Fehlmann B, Thomann A, Davies E, Twiss J , Romano C , Whalley D , Mayorga M , Levy C , Lipsmeier F, Popp W, Kustermann T, Svoboda H, Nikolcheva T, Trundell D, Lindemann M, Taylor K. Patient perspectives on symptoms and functional impacts to inform a digital assessment of Parkinson's disease . Poster presented at the 2023 International Congress of Parkingson's Disease and Movement Disorders; August 27, 2023. Copenhagen, Denmark.
Romano CD , Slota C , Bratlee-Whitaker E , Edwards T , Herring WL , McLeod L , Callahan L, Bullok K, Raimundo K, Taylor J, Taylor G, Kremer I, Monks D, Lappin D, Frangiosa T, Gnanasakthy K , Goss D , Comer M, Paulsen R, Hartry A, DiBenedetti D . Measuring "What Matters Most™" to individuals living with Alzheimer's disease and care partners: a conceptual model of Alzheimer's disease . Poster presented at the AAIC 2023 Conference; July 16, 2023. Amsterdam, Netherlands.
Bali V, Schelfhout J, Sher M, Peters A, Patel G, Mayorga M , (DeMuro) Romano C . Patient-reported symptoms, impacts, and treatment preferences in refractory or unexplained chronic cough: a qualitative study . Poster presented at the 2022 Advancing Allergy & Immunology Care (ACAAI) Annual Scientific Meeting; November 13, 2022. Louisville, KY.
Toback S, Lewis SA , DeMuro-Mercon CJ , Chien J, Schwartz R, Wolynn T, Wisman P, Block SL, Andrews W, Senders S, Williams NJ, Williams VS . Psychometric evaluation of a novel observer-reported outcome tool for the assessment of respiratory syncytial virus infection symptoms in infants . Poster presented at the IDWeek 2015; October 7, 2015. San Diego, CA.
Williams V , Coles T, DeMuro C , Lewis S , Williams N, Yarr S , Barghout V, Lowes L, Alfano L, Goldberg B, Gnanasakthy A , Tseng B. Psychometric evaluation of the Sporadic Inclusion Body Myositis (sIBM) Physical Functioning Assessment (sIFA) . Poster presented at the 1st Annual International Conference on Myositis; May 2015. Stockholm, Sweden.