Publications

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Displaying 1 through 17 of 17 publications.

Brown TM, Vera-Llonch M, Kanu C, Sikora Kessler A, Yarlas A, Fehnel SE. Cross-sectional quantitative evaluation of a novel patient-reported outcome measure in familial chylomicronemia syndrome. Patient Relat Outcome Meas. 2024 Feb 15;15:45-59. doi: 10.2147/PROM.S441583

Neumann ML, Allen JY, Ladner A, Kakani S, Weaver MS, Mercer DF. Exploring the impact of pediatric short bowel syndrome on parent well-being using a disease-specific pilot survey. Nutr Clin Pract. 2024 Feb;39(1):154-67. doi: 10.1002/ncp.11008

Nelson L, Ing SW, Rubin MR, Ma J, Martin S, Sen R, Ayodele O. Psychometric analysis of the patient-reported hypoparathyroidism symptom diary symptom subscale using data from two clinical trials. Patient Relat Outcome Meas. 2023 Nov 28;14:355-67. doi: 10.2147/PROM.S414794

Buchanan J, Hill M, Vass CM, Hammond J, Riedijk S, Klapwijk JE, Harding E, Lou S, Vogel I, Hui L, Ingvoldstad-Malmgren C, Soller MJ, Ormond KE, Choolani M, Zheng Q, Chitty LS, Lewis C. Factors that impact on women's decision-making around prenatal genomic tests: an international discrete choice survey. Prenat Diagn. 2022 Jun;42(7):934-46. doi: 10.1002/pd.6159

Coles T, Chen K, Nelson L, Harris N, Vera-Llonch M, Krasner A, Martin S. Psychometric evaluation of the hypoparathyroidism symptom diary. Patient Relat Outcome Meas. 2019 Jan 29;2019(10):25-36. doi: 10.2147/PROM.S179310

MacMahon B, Rothman KJ. Anencephaly and twins. Prenat Diagn. 2006 Apr 1;26(4):380-1.

McKenna SP, Whalley D, Doward LC. No SF-36 please – we're British!. Proc Br Psychol Soc. 2001;9(1):70.

McKenna SP, Doward LC, van Assche D. Diabetic foot ulcers: a patients' perspective. Proc Br Psychol Soc. 2001;9(1):70.

McKenna SP, Doward LC. Migraine – more than just a headache? Proc Br Psychol Soc. 2001;9(1):70.

Whalley D, Doward LC, McKenna SP. Urogenital atrophy: an accepted part of ageing? Proc Br Psychol Soc. 2001;9(1):78.

Doward LC, Whalley D, McKenna SP. The development of the Alzheimer's Carers Quality of Life Instrument (ACQLI). Proc Br Psychol Soc. 2001;9(1):65.

Cook SA, Doward LC, McKenna SP, Erdman R, Niero M, van Assche D. Venous leg ulcers – patient-reported impact on quality of life. Proc Br Psychol Soc. 2001;9(1):64.

Dewar Al, Doward LC, Whalley D, McKenna SP, Tennant A, Emery P. Impact of systemic lupus erythematosus (SLE) experienced from the patients' perspective. Proc Br Psychol Soc. 2001;9(1):64.