Khan AM, Lin P, Kamdar N, Mahmoudi E, Clarke P. Continuity of care in adults aging with cerebral palsy and spina bifida: the importance of community healthcare and socioeconomic context. Disabilities. 2023 Jun 12;3(2):295-306. doi: 10.3390/disabilities3020019
Clark M, Berry P, Martin S, Harris N, Sprecher D, Olitsky S, Hoag JB. Nosebleeds in hereditary hemorrhagic telangiectasia: development of a patient-completed daily eDiary. Laryngoscope Investig Otolaryngol. 2018 Nov 14;3(6):439-45. doi: 10.1002/lio2.211
Park EM, Deal AM, Yopp JM, Edwards TP, Wilson DJ, Hanson LC, Rosenstein DL. End-of-life experiences of mothers with advanced cancer: perspectives of widowed fathers. BMJ Support Palliat Care. 2016 Dec;6(4):437-44. doi: 10.1136/bmjspcare-2015-000976