Peay HL, Fischer R, Mange B, Paquin RS, Smith EC, Sadosky A, Russo L, Ricotti V, Rensch C, Morris C, Martin AS, Ganot A, Beaverson K, Mansfield C. Patients' and caregivers' maximum acceptable risk of death for non-curative gene therapy to treat Duchenne muscular dystrophy. Mol Genet Genomic Med. 2021 May;9(5):e1664. doi: 10.1002/mgg3.1664
Edwards TP, Yopp JM, Park EM, Deal A, Biesecker BB, Rosenstein DL. Widowed parenting self-efficacy scale: a new measure. Death Stud. 2018 Apr;42(4):247-53. doi: 10.1080/07481187.2017.1339743
Kosa KM, Cates SC, Karns S, Godwin SL, Coppings RJ. Are older adults prepared to ensure food safety during extended power outages and other emergencies? Findings from a national survey. Educ Gerontol. 2012 Aug 14;38(11):763-75. doi: 10.1080/03601277.2011.645436
Cates SC, Kosa KM, Moore CM, Jaykus LA, Ten Eyck TA, Cowen P. Listeriosis prevention for older adults: effective messages and delivery methods. Educ Gerontol. 2007 Jun;33(7):587-606. doi: 10.1080/03601270701411023
Hunt SM, McKenna SP, Doward LC. Preliminary report on the development of a disease-specific instrument for assessing quality of life of adults with growth hormone deficiency. Acta Endocrinol. 1993 Jun 1;128(Suppl 2):37-40.