Publications

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Displaying 1 through 3 of 3 publications.

Naik H, Brown M, Meninger S, Lombardelli S. Patient experience with acute hepatic porphyria before and after long-term givosiran treatment in a qualitative interview study. Mol Genet Metab Rep. 2025 Mar;42:101174. doi: 10.1016/j.ymgmr.2024.101174

Petrillo J, Paret K, Sawant R, Koenig A, Wolowacz S, Ronquest N, Rickards H. Estimation of health state utilities in Huntington's disease: a targeted review. Poster presented at the HSG 2022 Annual Meeting; November 2022. Tampa, FL. [abstract] J Huntingtons Dis. 2022 Oct 31; 11(s1):S31. Previously presented at the European Huntington's Disease Network (EHDN) 2022 Plenary Meeting. doi: 10.3233/JHD-229005

Stuckey HL, Oser SM, Miller EL, Oser TK, Peyrot M, Sharma A. “Not today, diabetes”: using blog analysis to understand emotional interactions and support among people with type 1 diabetes. Front Clin Diabetes Healthc. 2021 Jan 6;1:613569. doi: 10.3389/fcdhc.2020.613569