Publications

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Displaying 1 through 3 of 3 publications.

Naik H, Brown M, Meninger S, Lombardelli S. Patient experience with acute hepatic porphyria before and after long-term givosiran treatment in a qualitative interview study. Mol Genet Metab Rep. 2025 Mar;42:101174. doi: 10.1016/j.ymgmr.2024.101174

Munro CE, Buckley R, Vannini P, DeMuro C, Sperling R, Rentz DM, Johnson K, Gathchel JR, Amariglio R. Longitudinal trajectories of participant- and study partner-rated cognitive decline, in relation to alzheimer's disease biomarkers and mood symptoms. Front Aging Neurosci. 2022 Jan 31;13:806432. doi: 10.3389/fnagi.2021.806432

Stuckey HL, Oser SM, Miller EL, Oser TK, Peyrot M, Sharma A. “Not today, diabetes”: using blog analysis to understand emotional interactions and support among people with type 1 diabetes. Front Clin Diabetes Healthc. 2021 Jan 6;1:613569. doi: 10.3389/fcdhc.2020.613569