Park EM, Deal AM, Yopp JM, Chien SA, McCabe S, Hirsch A, Bowers SM, Edwards T, Rosenstein DL. Parenting through grief: a cross-sectional study of recently bereaved adults with minor children. Palliat Med. 2021 Dec;35(10):1923-32. doi: 10.1177/02692163211040982
Slota C, Bevans M, Yang L, Shrader J, Joe G, Carrillo N. Patient reported outcomes in GNE myopathy: incorporating a valid assessment of physical function in a rare disease. Disabil Rehabil. 2018 May;40(10):1206-13. doi: 10.1080/09638288.2017.1283712