Stuckey HL, Oser SM, Miller EL, Oser TK, Peyrot M, Sharma A. “Not today, diabetes”: using blog analysis to understand emotional interactions and support among people with type 1 diabetes. Front Clin Diabetes Healthc. 2021 Jan 6;1:613569. doi: 10.3389/fcdhc.2020.613569
Vekeman F, Gauthier-Loiselle M, Faust E, Lefebvre P, Lahoz R, Duh MS, Sacco P. Patient and caregiver burden associated with fragile x syndrome in the United States. Am J Intellect Dev Disabil. 2015 Sep;120(5):444-59. doi: 10.1352/1944-7558-120.5.444
Doward LC, McKenna SP, Meads DM, Jovell AJ, Fisk J, Eckert BJ. The international development of patient reported outcome indices for multiple sclerosis. Poster presented at the 2006 Sixteenth Meeting of the European Neurological Society; May 2006. Lausanne, Switzerland. [abstract] J Neurol. 2006; 253(Suppl 2):125.