Peay HL, Fischer R, Mange B, Paquin RS, Smith EC, Sadosky A, Russo L, Ricotti V, Rensch C, Morris C, Martin AS, Ganot A, Beaverson K, Mansfield C. Patients' and caregivers' maximum acceptable risk of death for non-curative gene therapy to treat Duchenne muscular dystrophy. Mol Genet Genomic Med. 2021 May;9(5):e1664. doi: 10.1002/mgg3.1664
Frick A, Benton C, Suzuki O, Dong O, Howard R, El-Sabae H, Wiltshire T. Implementing clinical pharmacogenomics in the classroom: student pharmacist impressions of an educational intervention including personal genotyping. Pharmacy (Basel). 2018 Oct 23;6(4):115. doi: 10.3390/pharmacy6040115
Edwards TP, Yopp JM, Park EM, Deal A, Biesecker BB, Rosenstein DL. Widowed parenting self-efficacy scale: a new measure. Death Stud. 2018 Apr;42(4):247-53. doi: 10.1080/07481187.2017.1339743
Hunt SM, McKenna SP, Doward LC. Preliminary report on the development of a disease-specific instrument for assessing quality of life of adults with growth hormone deficiency. Acta Endocrinol. 1993 Jun 1;128(Suppl 2):37-40.