Samsell B, Lothman K, Samsell EE, Ideishi RI. Parents' experiences of caring for a child with autism spectrum disorder in the United States: a systematic review and metasynthesis of qualitative evidence. Fam Syst Health. 2022 Mar;40(1):93-104. doi: 10.1037/fsh0000654
Andrews S, Mansfield C, O'Neill C, Peay H. Meaningful treatment outcomes for Sanfilippo syndrome: using a combination of focus groups and best-worst scaling to elicit and explore parents' priorities. Poster presented at the 2019 25th Annual Qualitative Health Research Conference; October 2019. Vancouver, Canada. [abstract] Int J Qual Methods. 2020 Mar 30; 19:2. doi: 10.1177/1609406920909934