Henderson GE, Ewing M, Kuczynski KJ, Cadigan RJ, Waltz M, Butterfield RM, Rini C, Weck K, Berg JS, Edwards TP. Development and validation of a measure of comprehension of genomic screening-negative results (CoG-NR). Eur J Hum Gene. 2020 Oct;28(10):1394-402. doi: 10.1038/s41431-020-0657-1
Andrews S, Mansfield C, O'Neill C, Peay H. Meaningful treatment outcomes for Sanfilippo syndrome: using a combination of focus groups and best-worst scaling to elicit and explore parents' priorities. Poster presented at the 2019 25th Annual Qualitative Health Research Conference; October 2019. Vancouver, Canada. [abstract] Int J Qual Methods. 2020 Mar 30; 19:2. doi: 10.1177/1609406920909934
McKenna SP, Whalley D, Doward LC. Which outcomes are important in schizophrenia? Int J Methods Psychiatr Res. 2000;9(1):S58-67.
Johannes CB, Crawford SL, Longcope C, McKinley SM. Bleeding patterns and changes in the perimenopause: a longitudinal characterization of menstrual cycles. Clin Consultations Obstetr Gynecol. 1996;8:9-20.