Park EM, Wang M, Bowers SM, Muriel AC, Rauch PK, Edwards T, Yi SM, Daniel B, Hanson LC, Song M-K. Adaptation and psychometric evaluation of the parenting concerns questionnaire-advanced disease. Am J Hosp Palliat Care. 2021 Oct 7. doi: 10.1177/10499091211049801
Copley-Merriman C, Yang X, Juniper M, Amin S, Yoo HK, Sen SS. Natural history and disease burden of neurofibromatosis type 1 with plexiform neurofibromas: a systematic review. Adolesc Health Med Ther. 2021 May 19;12:55-66. doi: 10.2147/AHMT.S303456
Watson V, Ryan M. Exploring preference anomalies in double bounded contingent valuation. J Health Econ. 2007 May 1;26(3):463-82. doi: 10.1016/j.jhealeco.2006.10.009