Andrews S, Mansfield C, O'Neill C, Peay H. Meaningful treatment outcomes for Sanfilippo syndrome: using a combination of focus groups and best-worst scaling to elicit and explore parents' priorities. Poster presented at the 2019 25th Annual Qualitative Health Research Conference; October 2019. Vancouver, Canada. [abstract] Int J Qual Methods. 2020 Mar 30; 19:2. doi: 10.1177/1609406920909934
Bradley RH, National Institute of Child Health and Human Development (NICHD) Early Child Care Research Network, McLeod LD. Child care and common communicable illnesses in children aged 37 to 54 months. Arch Pediatr Adolesc. 2003 Feb;157(2):196-200. doi: 10.1001/archpedi.157.2.196
Holmes SJ, McKenna SP, Doward LC, Hunt SM, Shalet SM. Development of a questionnaire to assess the quality of life of adults with growth hormone deficiency. Endocrinology and metabolism. 1995 Jan 1;2(1):63-9.