Neumann ML, Allen JY, Ladner A, Kakani S, Weaver MS, Mercer DF. Exploring the impact of pediatric short bowel syndrome on parent well-being using a disease-specific pilot survey. Nutr Clin Pract. 2024 Feb;39(1):154-67. doi: 10.1002/ncp.11008
Park EM, Wang M, Bowers SM, Muriel AC, Rauch PK, Edwards T, Yi SM, Daniel B, Hanson LC, Song M-K. Adaptation and psychometric evaluation of the parenting concerns questionnaire-advanced disease. Am J Hosp Palliat Care. 2021 Oct 7. doi: 10.1177/10499091211049801