Quittner AL, Alpern AN, Wolin D, McLeod L, Downey C, Nelson L, Khandelwal N. Pysychometric analyses of a new GI symptom tracker for cystic fibrosis. Poster presented at the 31st Annual North American Cystic Fibrosis Conference; November 2, 2017. Indianapolis, IN. [abstract] Pediatr Pulmonol. 2017 Sep 19; 52(S47):S453. doi: 10.1002/ppul.23840

OBJECTIVE To perform a psychometric evaluation of the GI Symptom Tracker at 10 CF centers across the US.

METHODS: Patients with CF were screened to determine eligibility and completed the GI Symptom Tracker, Cystic Fibrosis Questionnaire-Revised (CFQ-R), enzyme replacement questions and a global status question at a routine clinic visit, administered using an iPad in the CF center. A subset of patients completed a second clinic visit to obtain test-retest data. The psychometric evaluation included confirmation of the scale structure, reliability (internal consistency and test-retest), construct validity, and known groups validity.

RESULTS: More than 175 patients (mix of adults and adolescents) with CF at 10 centers participated. A subset of those patients completed the GI Symptom Tracker, global status question and enzyme replacement questions a second time 10-14 days later to evaluate test-retest reliability. Participants were able to complete the survey easily, with minimal missing data for the tracker.

CONCLUSIONS: The GI Symptom Tracker is easy for patients to complete and demonstrates good content validity based on CF patient-reported experiences of their GI symptoms. This tool will enable clinicians to unobtrusively measure patient-reported GI and nutritional problems and facilitates collaborative patient-provider discussions and decision-making.

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