Publications

Search our bibliography using the filters on the right-hand side.

Displaying 1 through 50 of 52 publications.

Qin S, Nelson L, McLeod L, Ma J, López Sánchez B, Gamil M, Stevens M, Jane Scott J. Psychometric evaluation of the pediatric RSV severity and outcomes rating system version 7 (PRESORSv7.1, observer-reported and PRESORSv7 clinician- reported forms) scores in young children hospitalized with respiratory syncytial virus infection. Presented at the 2021 Virtual Visual ISOQOL 28th Annual Conference; October 12, 2021. [abstract] Qual Life Res. 2021; 30(Suppl 1):S16-7. doi: https://doi.org/10.1007/s11136-021-02976-1

Joseph RW, Liu FX, Shillington AC, Macahilig CP, Diede SJ, Dave V, Harshaw Q, Saretsky TL, Pickard AS. Health-related quality of life (QoL) in patients with advanced melanoma receiving immunotherapies in real-world clinical practice settings. Qual Life Res. 2020 Oct;29(10):2651-60. doi: 10.1007/s11136-020-02520-7

Qin S, Nelson L, McLeod L, Eremenco S, Coons SJ. Assessing test-retest reliability of patient-reported outcome measures using intraclass correlation coefficients: recommendations for selecting and documenting the analytical formula. Qual Life Res. 2019 Apr;28(4):1029-33. doi: 10.1007/s11136-018-2076-0

Mercieca-Bebber R, Rouette J, Calvert M, King MT, McLeod L, Holch P, Palmer MJ, Brundage M, ISOQOL Best Practice for PROs-Reporting Task Force. Preliminary evidence on the uptake, use, and benefits of the CONSORT-PRO extension. Qual Life Res. 2017 Jun;26(6):1427-37. doi: 10.1007/s11136-017-1508-6

Kawata AK, Hsieh R, Hareendran A, Bender RH, Shaffer S, Sapra S, Desai P, Widnell K, Bayliss M, Buse DC, Revicki DA. Psychometric properties of the Migraine Physical Function Impact Diary (MPFID). Poster presented at the 2016 23rd Annual Conference of the International Society for Quality of Life Research (ISOQOL); October 2016. Copenhagen, Denmark. [abstract] Qual Life Res. 2016 Oct; 25(1):28.

Bacci ED, Wyrwich KW, Bender RH, Gries KS, Chen Y, Jain R, Konkol L, Merilainen MJ, Weng H. An adaptation of the profile of mood states (POMS) for use in adults with phenylketonuria (PKU): development of the PKUPOMS. Presented at the 2016 23rd Annual Conference of the International Society for Quality of Life Research (ISOQOL); October 2016. Copenhagen, Denmark. [abstract] Qual Life Res. 2016 Oct; 25(1):105.

Luquiens A, Whalley D, Laramee P, Falissard B, Kostogianni N, Rehm J, Manthey J, Paille F, Aubin HJ. Validation of a new patient-reported outcome instrument of health-related quality of life specific to patients with alcohol use disorder: the Alcohol Quality of Life Scale (AQoLS). Qual Life Res. 2016 Jun;25(6):1549-60. doi: 10.1007/s11136-015-1190-5

Chirila C, Zheng Q, Davenport E, Kaschinski D, Pfarr E, Hach T, Palencia R. Treatment satisfaction in type 2 diabetes patients taking empagliflozin compared with patients taking glimepiride. Qual Life Res. 2016 May;25(5):1199-207. doi: 10.1007/s11136-015-1140-2

Wilburn J, McKenna SP, Twiss J, Kemp K, Campbell S. Assessing quality of life in Crohn's disease: development and validation of the Crohn's Life Impact Questionnaire (CLIQ). Qual Life Res. 2015 Sep;24(9):2279-88. doi: 10.1007/s11136-015-0947-1.

Luquiens A, Whalley D, Crawford SR, Laramée P, Doward L, Price M, Hawken N, Dorey J, Owens L, Llorca PM, Falissard B, Aubin HJ. Development of the Alcohol Quality of Life Scale (AQoLS): a new patient-reported outcome measure to assess health-related quality of life in alcohol use disorder. Qual Life Res. 2015 Jun;24(6):1471-81. doi: 10.1007/s11136-014-0865-7

Twiss J, McKenna SP. Comparing the impact of psoriasis and atopic dermatitis on quality of life: co-calibration of the PSORIQoL and QoLIAD. Qual Life Res. 2015 Jan;24(1):105-13. doi: 10.1007/s11136-014-0630-y

Ascher-Svanum H, Novick D, Haro JM, Aguado J, Cui Z. Empirically driven definitions of "good", "moderate" and "bad" levels of functioning in the treatment of schizophrenia. Qual Life Res. 2013 Oct;22(8):2085-94.

Reeve BB, Wyrwich KW, Wu AW, Velikova G, Terwee CB, Snyder CF, Schwartz C, Revicki DA, Moinpour CM, McLeod LD, Lyons JC, Lenderking WR, Hinds PS, Hays RD, Greenhalgh J, Gershon R, Feeny D, Fayers PM, Cella D, Brundage M, Ahmed S, Aaronson NK, Butt Z. ISOQOL recommends minimum standards for patient-reported outcome measures used in patient-centered outcomes and comparative effectiveness research. Qual Life Res. 2013 Oct;22(8):1889-905. doi: 10.1007/s11136-012-0344-y

Twiss J, McKenna SP. Equating scores on two dermatology-specific patient-reported outcome measures. Poster presented at the 19th Annual Conference of the International Society for Quality of Life Research (ISOQOL); October 2012. Budapest, Hungary. [abstract] Qual Life Res. 2012 Oct; 21(1):94. doi: 10.1007/s11136-012-0248-x

Ben-L'amri M, McKenna SP, Wilburn J, Twiss J. Assessing quality of life in new regions of the world: further development of the PsAQoL. Poster presented at the 19th Annual Conference of the International Society for Quality of Life Research (ISOQOL); October 2012. Budapest, Hungary. [abstract] Qual Life Res. 2012 Oct; 21(S1):120.

Norquist JM, Girman C, Fehnel S, Demuro-Mercon C, Santanello N. Choice of recall period for patient-reported outcome (PRO) measures: criteria for consideration. Qual Life Res. 2012 Aug 1;21(6):1016-20.

Launois R, Le Moine JG, Lozano FS, Mansilha A. Construction and international validation of CIVIQ-14 (a short form of CIVIQ-20), a new questionnaire with a stable factorial structure. Qual Life Res. 2012 Aug;21(6):1051-8. doi: 10.1007/s11136-011-0008-3

McKenna SP, Wilburn J, Twiss J, Ben-L'amri M, Kemp K, Campbell S. Crohn's disease: symptoms, functional limitations and quality of life. Poster presented at the 19th Annual Conference of the International Society for Quality of Life Research (ISOQOL); November 2012. Budapest, Hungary. [abstract] Qual Life Res. 2012; 21(1):103. doi: 10.1007/s11136-012-0248-x

Bell C, McLeod LD, Nelson LM, Fehnel SE, Zografos LJ, Bowers B. Development and psychometric evaluation of a new patient-reported outcome instrument measuring the functional impact of insomnia. Qual Life Res. 2011 Nov 1;20(9):1457-68.

Swartz RJ, Schwartz C, Basch E, Cai L, Fairclough DL, McLeod L, Mendoza TR, Rapkin B. The king's foot of patient-reported outcomes: current practices and new developments for the measurement of change. Qual Life Res. 2011 Oct 1;20(8):1159-67.

McKenna SP, Meads DM, Doward LC, Twiss J, Pokrzywinski R, Revicki D, Hunter CJ, Glendenning GA. Development and validation of the living with chronic obstructive pulmonary disease questionnaire. Qual Life Res. 2011 Sep 1;20(7):1043-52.

Stull DE, van Hanswijck de Jonge P, Houghton K, Kocun C, Sandor DW. Development of a frequent heartburn index. Qual Life Res. 2011 Sep 1;20(7):1023-34.

Deal LS, Williams VSL, DiBenedetti DB, Fehnel SE. Development and psychometric evaluation of the endometriosis treatment satisfaction questionnaire. Qual Life Res. 2010 Aug 1;19(6):899-905.

Luciano JV, Ayuso-Mateos JL, Fernandez A, Aguado J, Serrano-Blanco A, Roca M, Haro JM. Utility of the twelve-item World Health Organization Disability Assessment Schedule II (WHO-DAS II) for discriminating depression "caseness" and severity in Spanish primary care patients. Qual Life Res. 2010 May;19(1):97-101.

Revicki DA, Gnanasakthy A, Weinfurt K. Documenting the rationale and psychometric characteristics of patient reported outcomes for labeling and promotional claims: the PRO evidence dossier. Qual Life Res. 2007 May;16(4):717-23.

McKenna SP, Doughty N, Meads DM, Doward LC, Pepke-Zaba J. The Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR): a measure of health-related quality of life and quality of life for patients with pulmonary hypertension. Qual Life Res. 2006 Feb 1;15(1):103-15.

McKenna SP, Whalley D, Dewar Al, Erdman RA, Kohlmann T, Niero M, Baro E, Cook SA, Crickx B. International development of the Parents' Index of Quality of Life in Atopic Dermatitis (PIQoL-AD). Qual Life Res. 2005 Feb 1;14(1):231-41.

Fehnel SE, Bann CM, Hogue SL, Kwong WJ, Mahajan SS. The development and psychometric evaluation of the motivation and energy inventory (MEI). Qual Life Res. 2004 Sep 1;13(7):1321-36.

Shah S, Sesti AM, Copley-Merriman K, Plante M. Quality of life terminology included in package inserts for US approved medications. Qual Life Res. 2003 Dec 1;12(8):1107-17.

Gandek B, Alacoque J, Uzun V, Andrew-Hobbs M, Davis K. Translating the Short-Form Headache Impact Test (HIT-6) in 27 countries: methodological and conceptual issues. Qual Life Res. 2003 Dec 1;12(8):975-9.

McKenna SP, Doward LC, Whalley D, Tennant A, Emery P, Veale DJ. Validating the psoriatic arthritis quality of life (PSAQoL) instrument. Poster presented at the 10th Annual Conference of the International Society for Quality of Life Research (ISQOL); November 2003. [abstract] Qual Life Res. 2003 Nov; 12(7):777.

McKenna SP, Doughty N, Meads DM, Doward LC, Pepke-Zaba J. Health-related quality of life in pulmonary arterial hypertension: results from a postal survey. Poster presented at the 10th Annual Conference of the International Society for Quality of Life Research (ISQOL); November 2003. [abstract] Qual Life Res. 2003 Nov; 12(7):836.

Doward LC, McKenna SP, Meads DM. Development of the herpes outbreak impact questionnaire (HOIQ). Poster presented at the 10th Annual Conference of the International Society for Quality of Life Research (ISQOL); November 2003. [abstract] Qual Life Res. 2003 Nov; 12(7):862.

Brazier JE, Stevens KJ, McKenna SP, Doward LC. The valuation of atopic dermatitis health states in children. Poster presented at the 10th Annual Conference of the International Society for Quality of Life Research (ISQOL); November 2003. [abstract] Qual Life Res. 2003 Nov; 12(7):833.

Doughty N, McKenna SP, Doward LC, Meads DM, Pepke-Zaba J. The impact of pulmonary arterial hypertension (PAH) on patients: results from qualitative patient interviews. Poster presented at the 10th Annual Conference of the International Society for Quality of Life Research (ISQOL); November 2003. [abstract] Qual Life Res. 2003 Nov; 12:814.

Fehnel SE, McLeod LD, Brandman J, Arbit DI, McLaughlin-Miley CJ, Coombs JH, Martin AR, Girman CJ. Responsiveness of the acne-specific quality of life questionnaire (Acne-QoL) to treatment for acne vulgaris in placebo-controlled clinical trials. Qual Life Res. 2002 Dec 1;11(8):809-16.

Doward LC, McKenna SP, Whalley D, Tennant A, Emery P, Griffiths B. Validating the Systemic Lupus Erythematosus Quality of Life (SLEQoL) instrument. Poster presented at the 9th Annual Conference of the International Society for Quality of Life Research (ISOQOL); October 2002. Orlando, FL. [abstract] Qual Life Res. 2002 Aug; 11(7):651.

McKenna SP, Doward LC, Dewar Al. Assessing quality of life in osteoporosis clinical trials. Poster presented at the 8th Annual Conference of the International Society for Quality of Life Research (ISOQOL); November 2001. Amsterdam, The Netherlands. [abstract] Qual Life Res. 2001 Apr; 10(3):235.

McKenna SP, Cook SA, Whalley D, Doward LC, van Assche D. Testing the psychometric properties of the PSORIQoL: a psoriasis-specific quality of life instrument. Poster presented at the 8th Annual Conference of the International Society for Quality of Life Research (ISOQOL); November 2001. Amsterdam, The Netherlands. [abstract] Qual Life Res. 2001 Apr; 10(3):262.

McKenna SP, Whalley D, Doward LC. The needs-based model of quality of life. Poster presented at the 7th Annual Conference of the International Society for Quality of Life Research (ISOQOL); October 2000. Vancouver, Canada. [abstract] Qual Life Res. 2000 Mar; 9(3):339.

McKenna SP, Cook SA, Whalley D, Doward LC, Niero M, Erdman RA. The development of the PSORIQoL: a quality of life measure specific to psoriasis. Poster presented at the 7th Annual Conference of the International Society for Quality of Life Research (ISOQOL); October 2000. Vancouver, Canada. [abstract] Qual Life Res. 2000 Mar; 9(3):322.

Brod M, Doward LC, McKenna SP, Whalley D. The measurement of caregiver QoL and US adaptation of the Alzheimer's Caregivers Quality of Life Instrument (ACQLI). Poster presented at the 7th Annual Conference of the International Society for Quality of Life Research (ISOQOL); October 2000. Vancouver, Canada. [abstract] Qual Life Res. 2000 Mar; 9(3):272.

Whalley D, Doward LC, Dewar Al, McKenna SP, Tennant A, Emery P. The development of a quality of life measure specific to psoriatic arthritis. Poster presented at the 6th Annual Conference of the International Society for Quality of Life Research (ISOQOL); November 1999. Barcelona, Spain. [abstract] Qual Life Res. 1999 Nov; 8(7):652.

Doward LC, Whalley D, Dewar Al, McKenna SP, Tennant A, Emery P. The development of the SLE-QoL: a quality of life instrument specific to systemic lupus erythematosus. Poster presented at the 6th Annual Conference of the International Society for Quality of Life Research (ISOQOL); November 1999. Barcelona, Spain. [abstract] Qual Life Res. 1999 Nov; 8(7):609.

McKenna SP, Whalley D, Renck-Hooper U, Carlin S, Doward LC. The development of a quality of life instrument for use with post-menopausal women with urogenital atrophy in the UK and Sweden. Qual Life Res. 1999 Aug;8(5):393-8.

McKenna SP, Doward LC, Alonso J, Kohlmann T, Niero M, Prieto L, Wiren L. The QoL-AGHDA: an instrument for the assessment of quality of life in adults with growth hormone deficiency. Qual Life Res. 1999 Jun;8(4):373-83.

McKenna SP, Doward LC, Whalley D. The development and testing of the well-being index for surgical patients (WISP). Qual Life Res. 1998 Feb;7(2):167-73.

Doward LC, McKenna SP, Kohlmann T, Niero M, Patrick D, Spencer B, Thorsen H. The international development of the RGHQoL: quality of life measure for recurrent genital herpes. Qual Life Res. 1998 Feb;7(2):143-53.

Girman CJ, Hartmaier S, Thiboutot D, Johnson J, Barber B, Demuro-Mercon C, Waldstreicher J. Evaluating health-related quality of life in patients with facial acne: development of a self-administered questionnaire for clinical trials. Qual Life Res. 1996 Oct;5(5):481-90.

Girman CJ, Hartmaier S, Thiboutot D, Johnson J, Barber B, Demuro-Mercon C. Development of an acne-specific quality of life questionnaire. Poster presented at the ISOQOL 2nd Annual Conference; October 1995. Montreal, Canada. [abstract] Qual Life Res. 1995 Oct; 4(5):387-506. Previously presented at the British Society for Investigative Dermatology Annual Meeting.